Newly diagnosed with grade 2 IDC, grade 3 post surgery

I am a 57 year old lady who Found a lump in my right breast around middle of August 2021. I was due my mammogram on 1st September so wasn't overly concerned as had cysts drained in the past.  Attended my mammogram and pointed out to the radiographer I thought I could feel a lump so advised to see Gp as mammogram results would be another 3 weeks. Attended Gp appointment on 3 rd September referred to breast team,  appointment for 5 th September arranged, very prompt I have to say. 

Had ultrasound and biopsies taken on 5 th September then went on holiday. Came back to appointment for biopsy results on 27 th September but had also received my mammogram results which basically said everything ok see you in 3 years!

Attended for biopsy results which shown grade 2 IDC lump 1.9 cm to right breast.  Referred for MRI to confirm size only to get results that something was showing on my thyroid, second lump in the same breast and something in my armpit! Absolutely gutted and a nervous wreck! 
Following an MDT made up of different professions overseeing and discussing my case they advised second look ultrasound. I attended  for separate ultrasounds. The  Thyroid ultrasound shown  nothing of concern, the breast ultrasound shown the second lump as a cyst  therefore drained to dryness and the armpit lump didn't show anything of concern too, how relieved was I !

Fnally I had a lumpectomy and sentinel node biopsies done on 27 th November  2021 and from the tissue removed and  sent for testing it shows a grade 3 IDC not grade 2 and a 2.2 cm lump, fortunately the 3 sentinel nodes removed are all negative.

I am now waiting the oncotype DX results to see if I need chemo. I have tried looking to see if there is anybody else on here with the same cancer that has not had chemo for this. As highlighted I know everybodies treatment plan is different.

I am also told that my cancer is ER positive and HER negaive and that I will need radiotherapy and hormone therapy too.

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  • Hi Andrea

    Good to hear from you. Chemo was mostly kind to me , had last one on Friday and radiotherapy planning appointment tomorrow with a view to 15 sessions in June.

    How has your chemo been? Glad that but is over now , but struggling a bit more with the mind games now and how you put fear of recurrence into perspective after treatment xx

  • Hi Minty it's lovely to hear from you. I'm glad it was ok for you. Mine was ok but certainly wouldn't want to do it again.

    I have been to see my consultant today so just need to wait for my radiotherapy appointment.

    oh my I have to say he was brilliant, he told me with the micro invasion there is no prediction on the impact if this on my prognosis but to be reassured that we have done all we can now so I should enjoy life and keep smiling and we will tackle any issues if they arise , worrying isn't going to change the outcome which I totally agree with and I could worry for the next 10 or so years and nothing happens .

    I think I just need to be really positive and the best advice he gave was to keep checking my boobs to become familiar with how the feel now so I should be able to detect changes early, this along with my screening programme should  hopefully provide a good surveillance tool.

    I think it's natural that we will worry but life is for living. I have loads of things booked, 5 holidays to start with ha! He just said I need to cover my boob for 2 years when in the sun then after that it should be considered back to normal.

    I hope you get some support and reassurance to help you move forward it's so important.

     

    love Andrea