Hi, I was initially told my IDC was grade one but after my lumpectomy it was regraded to 3 . To say I was horrified is putting it mildly . They got clear margins and no lymph nodes involved so I was given 5 days of radiotherapy and tamoxifen . I finished the radio in July . My oncotype eas 18 so eas tons no chemo necessary. I'm 54 . 

Hi Terry just a little update. Oncotype came back as 35 but the oncologist was more concerned the the tumour has eroded some vascular vessels. I am now due to start chemo next week, gutted I have to say!

I will have FEC once every 3 week for 6 cycles so 18 week process. I am praying it goes well and the side effects are minimal.

love Kiera

Hi Caroline, I know I feel they may but praying they don't I have to say!

good luck for Tuesday I hope all goes well. We will soon be done, have to keep positive hun xxxx

love Andrea

Hi Andrea

How are you getting on , have you had another cycle ? x

Hi there, I am having my second one tomorrow. I wasn't too bad with it just very fatigued and sone headaches, hope I only have these side effects all the way through!

Hiw are you ? Where r u up to with everything?

Good that doesn't sounds too bad.

I've been Ok really but bloated but all manageable.My picc line is too tight so going to get it adjusted in the morning.

My next chemo is next Thursday.

Hope tomorrow goes well x 

I'm so glad your doing ok. My Picc irritates me as it's place on the inner side of my arm, I know they can only put them where the veins are. I was allergic to the dressings so initially came up in blisters but they have gone now and I have a different dressing.

Although the side effects were manageable I didn't feel normal till only 3 days ago, I  think the anti sickness medication didnt suit me so I have a different one ready for tomorrow so I'm hoping I will recover sooner this time. Anyway what will be will be.

At least I will have 2 down tomorrow only 4 to go, I have to say it has come round fairly quickly.

im going to start working from home for a couple of days a week from 14 th feb so have to see how that goes, it will keep my mind occupied I'm hoping and help the time go quicker 

you take care and keep in touch xx

Hi Keira. Hope you don't mind me bumping your thread. I had a grade 3 cancer which spread to my lymph nodes. I had surgery 2 days ago to clear my armpit so I'm in recovery again.  I know I'm having chemo but not sure what yet as have to wait for these results now. I know I'm also HER2 positive.  Anyway,  the chemo...did you cold cap? And if so how was it as I'm definitely going to give it a go xxx hope you're OK

Hi Donna, no I didn't cold cap. I'm not convinced it works brilliantly for lots of people but I know sone do benefit from it. I think it has to be individual choice based on the information   they give to you.

I hope you get your treatment plan soon as it does help when you know exactly what's going on.

take care, here to help if I can

love Kiera x

Hi Donna 

I am having Chemo, 3rd FEC next week and then 3 Docetaxel, I'm using the Cold Cap, happy to share my experience so far.

If you can go to the Hospital before maybe when you first go for your first bloods to get it fitted, I did this which was better as they had my size before my treatment.

It is crucial it fits correctly unfortunately my doesn't as I have a tiny head so have lost my hair at the crown. 
 
The Nurses will wet your hair and apply conditioner, take your own with you, I use Simple Shampoo and Conditioner Pax also do one. Take a hairband to protect your forehead, I also put a cotton ball on my temple inside the hairband.  I take a paracetamol 2 hours before then 4 hours later. The first 20 minutes is tough but after that it's a doddle, it does make the whole process a lot longer but it's worth it. You do get cold , they will have blankets but I take a hot wattle bottle with me, keep your neck and shoulders warm if you can, my hospital put heat packs on my shoulders. I also put a little bit of soft material under the chin strap as it' can be tight. It's so important it fits properly so they need too make sure you have the correct size. 

paxmanscalpcooling.com/  make sure you read this it has all the info, I wash my hair once a week, I use a  wide Combe but I also do brush it. You will have a big shed around 14 days in but it does slow down, my hair has gone thin but I still have lots, I am not sure how it will be at the end, the thing is for me I have (had) thick big long blonde hair, I'm 38 and it's actually the only thing I like about me, I wasn't willing to let it go without a fight, my Cancer isn't taking that aswel, Even if I lose most of it, it is very gradual which has reallly helped. 
 
Hope this has helped, I wish you well xxx 

Thank you for that. I really appreciate the information.  I'm definitely going to try the cold cap, nothing to lose!! I'll watch the video later. Any help during this time is good as it's a minefield!! Xx hope you're fairing well xx

No problem,

it's a link too the Website, this is the machine my hospital use but the Information will probably be the Same, Chemo is Managable, take all the Sickness they give you. The key is too drink lots and flush it out. 
 

love Sarah 

No problem,

it's a link too the Website, this is the machine my hospital use but the Information will probably be the Same, Chemo is Managable, take all the Sickness they give you. The key is too drink lots and flush it out. 
 

love Sarah 

Thank you so much Sarah xxx