Newly diagnosed with grade 2 IDC, grade 3 post surgery

I am a 57 year old lady who Found a lump in my right breast around middle of August 2021. I was due my mammogram on 1st September so wasn't overly concerned as had cysts drained in the past.  Attended my mammogram and pointed out to the radiographer I thought I could feel a lump so advised to see Gp as mammogram results would be another 3 weeks. Attended Gp appointment on 3 rd September referred to breast team,  appointment for 5 th September arranged, very prompt I have to say. 

Had ultrasound and biopsies taken on 5 th September then went on holiday. Came back to appointment for biopsy results on 27 th September but had also received my mammogram results which basically said everything ok see you in 3 years!

Attended for biopsy results which shown grade 2 IDC lump 1.9 cm to right breast.  Referred for MRI to confirm size only to get results that something was showing on my thyroid, second lump in the same breast and something in my armpit! Absolutely gutted and a nervous wreck! 
Following an MDT made up of different professions overseeing and discussing my case they advised second look ultrasound. I attended  for separate ultrasounds. The  Thyroid ultrasound shown  nothing of concern, the breast ultrasound shown the second lump as a cyst  therefore drained to dryness and the armpit lump didn't show anything of concern too, how relieved was I !

Fnally I had a lumpectomy and sentinel node biopsies done on 27 th November  2021 and from the tissue removed and  sent for testing it shows a grade 3 IDC not grade 2 and a 2.2 cm lump, fortunately the 3 sentinel nodes removed are all negative.

I am now waiting the oncotype DX results to see if I need chemo. I have tried looking to see if there is anybody else on here with the same cancer that has not had chemo for this. As highlighted I know everybodies treatment plan is different.

I am also told that my cancer is ER positive and HER negaive and that I will need radiotherapy and hormone therapy too.

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  • Hi, I was initially told my IDC was grade one but after my lumpectomy it was regraded to 3 . To say I was horrified is putting it mildly . They got clear margins and no lymph nodes involved so I was given 5 days of radiotherapy and tamoxifen . I finished the radio in July . My oncotype eas 18 so eas tons no chemo necessary. I'm 54 . 

  • Hi Terry just a little update. Oncotype came back as 35 but the oncologist was more concerned the the tumour has eroded some vascular vessels. I am now due to start chemo next week, gutted I have to say!

    I will have FEC once every 3 week for 6 cycles so 18 week process. I am praying it goes well and the side effects are minimal.

     

    love Kiera

  • Hi Kiera

    How are you doing ? Have you started your chemo yet ?

    I am starting on Tuesday fortnightly 4 x ec then 4 x pac 

     

    x

    Caroline

  • Hi Caroline, how are you?

    yes I had my first cycle last Friday. I have to say I have been surprised by the side effects as expected it to be so much worse. I am just hoping that they are like that for each cycle and don't get worse!

    I am having 6 cycles 3 weekly, just want it done. 
     

    Love Andrea

  • Hi Andrea

    I'm glad the side effects haven't been too bad so far. I've got a feeling they may get worse as we go along , but take each one as it comes.

    I wonder how they decide on which drugs and how many cycles ? Best not to think about I suppose.

    Let me know how your'e getting on.

    Take Care x 

     

  • Hi Caroline, I know I feel they may but praying they don't I have to say!

    good luck for Tuesday I hope all goes well. We will soon be done, have to keep positive hun xxxx

    love Andrea

  • Hi Andrea

    How are you getting on , have you had another cycle ? x

  • Hi there, I am having my second one tomorrow. I wasn't too bad with it just very fatigued and sone headaches, hope I only have these side effects all the way through!

    Hiw are you ? Where r u up to with everything?

  • Good that doesn't sounds too bad.

    I've been Ok really but bloated but all manageable.My picc line is too tight so going to get it adjusted in the morning.

    My next chemo is next Thursday.

    Hope tomorrow goes well x 

  • I'm so glad your doing ok. My Picc irritates me as it's place on the inner side of my arm, I know they can only put them where the veins are. I was allergic to the dressings so initially came up in blisters but they have gone now and I have a different dressing.

    Although the side effects were manageable I didn't feel normal till only 3 days ago, I  think the anti sickness medication didnt suit me so I have a different one ready for tomorrow so I'm hoping I will recover sooner this time. Anyway what will be will be.

    At least I will have 2 down tomorrow only 4 to go, I have to say it has come round fairly quickly.

    im going to start working from home for a couple of days a week from 14 th feb so have to see how that goes, it will keep my mind occupied I'm hoping and help the time go quicker 

     

    you take care and keep in touch xx

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  • I'm so glad your doing ok. My Picc irritates me as it's place on the inner side of my arm, I know they can only put them where the veins are. I was allergic to the dressings so initially came up in blisters but they have gone now and I have a different dressing.

    Although the side effects were manageable I didn't feel normal till only 3 days ago, I  think the anti sickness medication didnt suit me so I have a different one ready for tomorrow so I'm hoping I will recover sooner this time. Anyway what will be will be.

    At least I will have 2 down tomorrow only 4 to go, I have to say it has come round fairly quickly.

    im going to start working from home for a couple of days a week from 14 th feb so have to see how that goes, it will keep my mind occupied I'm hoping and help the time go quicker 

     

    you take care and keep in touch xx

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