Acute Myeloid Leukaemia/Sepsis Survivor my stuggle

[[ ]]I was diagnosed with AML in November 2014 at the age of 19 

After two rounds of chemo I was admitted to intensive care with neutropenic sepsis.

I suffered from cardiac arrest, multiple organ failure, pleurisy, mrsa in my lungs and nose, cdiff, I was taken off partial life support and put onto full life support having a tracheostomy tube fitted into my neck. I was in a coma for 3 months. 

​Im Currently in remission and thankfully I survived. But the one thing I struggle with is going out on my own. 

I have scars of my neck and chest and when people stare I can't cope. I loose all my confidence and feel so low in myself. I have people come I to me saying 'you are that girl who had cancer aren't you?' 

Does anyone have any way of dealing with this? Any opinions or ideas on how I can get to grips with it? I've tried wrapping my neck with scarfs and necklaces but it never seems to work. 

Thanks in advance

 

  • Hi jessiemp

    Thank you for sharing your story and photo with us.

    It is great that you are in remission after all that you have been through.

    Our nurses would be well placed to talk to you about how you are feeling about your scars.

    You can call the team on freephone: 0808 800 4040 from Monday to Friday, 9am to 5pm.

    I hope too that some of our friendly members will have ideas which will help you and that they respond to you shortly.

    Best wishes

    Jane

  • Darling, you are such a beautiful girl, if people stare and say things just say yes and be proud of yourself and your scars and all you've battled through!  Having said that, I know that at your age it's easy to be embarrassed, have you tried asking at your hospital, maybe the Macmillan nurses in the first instance, about special make-up for your scars?I believe there is some that people with birthmarks on their faces can use, but don't know much about it, I'm afraid.  Please do ask.  Also, it is well worth contacting the nurses on here as Moderator Jane suggests, they may well be able to point you in the right direction. 

    I wish you all the best, Jess, and hope you have a lovely, happy future ahead of you - as I believe you will.

    God bless.

    Hazel x