Hi Stepnes

I was diagnosed in July 19 after finding a lump, I started on Letrozole in August and had a lumpectomy in sept followed by  3 weeks radiotherapy in december/Jan. I had terrible hot flushes and joint pain/stiffness with the Letrozole but hoped they would get better. It didn't and after discussing it with the oncologist I changed to Aromasin in Nov 20. The side effects have improved a bit on this.

I have to say I have thought about not taking any hormone treatment  as like you say it is affecting my quality of life - I do not sleep very well and still have the flushes and joint pain. The reason I persevere is that the cancer was found to have spread to 1 out of 3 lymph nodes they took when I had the surgery so feel I should do everything possible to prevent reoccurrence. No one can really advise you - it's your decision. I always find discussing things with the oncologist helpful - I tend to convince myself of the worst case scenario and need someone to point out the facts. Sorry if I have waffled on - I hope you come to a decsion you are happy with

Love and Best wishes

Hi Stepnes

I was diagnosed in July 19 after finding a lump, I started on Letrozole in August and had a lumpectomy in sept followed by  3 weeks radiotherapy in december/Jan. I had terrible hot flushes and joint pain/stiffness with the Letrozole but hoped they would get better. It didn't and after discussing it with the oncologist I changed to Aromasin in Nov 20. The side effects have improved a bit on this.

I have to say I have thought about not taking any hormone treatment  as like you say it is affecting my quality of life - I do not sleep very well and still have the flushes and joint pain. The reason I persevere is that the cancer was found to have spread to 1 out of 3 lymph nodes they took when I had the surgery so feel I should do everything possible to prevent reoccurrence. No one can really advise you - it's your decision. I always find discussing things with the oncologist helpful - I tend to convince myself of the worst case scenario and need someone to point out the facts. Sorry if I have waffled on - I hope you come to a decsion you are happy with

Love and Best wishes

Thank you for replying Rosie9122.

I am really sorry to hear about your diagnosis, and that the cancer had spread to your lymph nodes.  I sometimes think that if my results were not as positive as they were I'd be ble to decide more easily about taking the tablets. I can certainly understand why you feel the need to persevere with them. Really sorry that you experienced such nasty side effects.  I've just googled Aromasin and it comes up with most of the same, but you say they only helped reduce side effects a little?

Likewise, my apologies for waffling on, makes us feel better doesn't it to offload a bit.

Good luck to you 

stepnes