Bilateral breast cancer

I would like to chat to anyone that has bilateral breast cancer lots of surgery a year down line still coming to terms with it all im 54 years old with one side masectomy reconstruction nipple sacrificing skin sparing with silicone implant always painful and pulling

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  • Hi! 

    hope you are doing well. I also have Bilateral Breast cancer. I have both mastectomy. Hope you doing ok 

    I am sorry to hear your experience and I hope you ok. 

  • Thankyou for your reply do you have reconstructions on both sides my left side was tumour removal and made smaller that side is ok it's the right side it was multi focal breast cancer with 2 positive nodes a shock to say the least how are you coping do you have implants ? My armpit always hurts and swells it's radical surgery isn't it I hope your ok ive just had some physio for shoulder blade pain but don't really know what's safe to try I hope your ok

  • Hi! Nice to hear from you. My lymph node was negative but I am still have some sharp pain occasionally from that area. I found the after surgery exercise help a little. I haven't had the reconstruction. My cancer also on my left breast and my right was high grade. I am under chemotherapy and will follow by radiotherapy. Have you done all that yet ? Did you do the reconstruction at the same time when you remove the tumor ? 
    I tried to asked my friends who had lymph node removed. I remember one of friends of mine had it. And she had to regularly doing exercise to reduce the pain and swollen issues. I think if exercise can substitute drugs. I would preferred exercise

    my friends asked below questions 


    1)Your right side was multi focal with 2 positive nodes. Do you have done clearance to remove all your right side lymph nodes? 
    2)My friend N who underwent clearance 11 years ago has armpit hurts, hard feelings and swelling until now. N has to protect her affected hand from blood pressure measurement, blood test and IV cannula insertion in order to prevent lymphoedema. Does your CNS give you the same advice?

    Please let me know and I hope you do well

  • hello my surgery was in dec 2019 i had four tumours in right breast er positive her2 negative one tumour in left i had full lymph node clearance in right side and the implant was done at the same time as tumour removal they took all 15 lymph nodes in a seperate large incision under my arm and took seven nodes from my left side also i have a lot of intermittent swelling under right armpit found out recently have many small clips in axilla where they clipped together blood vessels !! arm aches a lot but no swelling as yet hopefully never your friend gives me hope 11 years after surgery i presume for positive nodes thats great my cancer was high grade also stage 3 my armpit aches and is tender a lot of the time shoulder blade pain also its crap isnt it ive just started seeing a physio hope it helps i had chemotherapy and extensive radiotherapy up to collar bone i think some of the pain comes from that ive been told scar tissue fibrosis and nerves they have to cut causes a lot of pain problems its nice to talk to you any help you want just ask the radiotherapy is not as bad as chemo just uncomfertable with position your in arms ache a lot

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  • hello my surgery was in dec 2019 i had four tumours in right breast er positive her2 negative one tumour in left i had full lymph node clearance in right side and the implant was done at the same time as tumour removal they took all 15 lymph nodes in a seperate large incision under my arm and took seven nodes from my left side also i have a lot of intermittent swelling under right armpit found out recently have many small clips in axilla where they clipped together blood vessels !! arm aches a lot but no swelling as yet hopefully never your friend gives me hope 11 years after surgery i presume for positive nodes thats great my cancer was high grade also stage 3 my armpit aches and is tender a lot of the time shoulder blade pain also its crap isnt it ive just started seeing a physio hope it helps i had chemotherapy and extensive radiotherapy up to collar bone i think some of the pain comes from that ive been told scar tissue fibrosis and nerves they have to cut causes a lot of pain problems its nice to talk to you any help you want just ask the radiotherapy is not as bad as chemo just uncomfertable with position your in arms ache a lot

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