bone & joint pain- referred to bone scan and CAT scan scared

Hi- I got switched from anastrazole to examestane about ten days ago, I already have rheumatold and osteoarthitis but getting joint pain from hell, especially in wrists and hands, and now feet. also horrible muscle pain. saw surgeon yesterday as pain in sternum and ribs on opposite side to my surgery. feeling really down, he is being cautious so has referred me for both CAT and bone scans to check out whats going on my anatomy is weird due to birth defect in chest, born with what I now know is Polands syndrome, missing pec muscles and sternum is depressed, so ribs on right side go in instead of out. Also, breast didnt develop properly so had an implant removed when they gave me mastectomy and reconstruction, anyway, I feel really awful physically, and emotionally. I dont like the look of what Im left with, the dent is horribly obvious, I have a dog ear scar that sticks out like a hump on my side, and other scars down side of breast are a right mess - he was joking that during surgery he thought about putting in an implant to fill the dent, then putting another one on top of it to make the mound, I rather wish now that he had done so. Im dreading that there may be bone issues ok, scared its cancer in my bones, although mine was stage 2 invasive ductal and oestrogen positive her negagive. I have an automimmune problem anyway so have been living on methrotrexate and steroids for q17 years, Im sick of being sick, and just want some idea of what to expect from the bone scans. I know I need to get used to the exeamestane, but wonder if I can cope if thats whats causing so much pain, esp. in ,y hands and wrists, my work involves writing or typing and I can barely hold a pen.

 

  • Hi poland19,

    It certainly sounds like you're going through a lot. I hope it's not too long to wait for the scans - I can understand it must be unsettling waiting for more information.

    If the difficulties with the new treatment are unmanageable then do speak to your doctor about this to see if there's anything that can be done to help.

    As I say I hope you're able to find out more soon and I hope the pain eases soon too.

    As you know we're always here for support on this forum.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • thanks, I think it was just a bit rubbish thinking I might now be able to start looking forward rather than looking over my shoulder! My appointment got cancelled back in March due to Covid concerns they shut the unit that sees me. The oncologists reviewed me by phone, Im used to arthritis pain, but it was doing my head in on anastrazole, my hands and wrists are horribly sore now, and as a long term rheumatology oddbod patient Ive been round the block looking for pain relief  so many times, and am already waiting for jpnt injections, which of course arent happening at present. amd orthotics to stop my feet killing me....also not happening yet. ANyway the onco decided to try me on exemastane, instead of anastrazole, and it will obviously take a while to settle, but I just feel like Im running out of time to sort things out, I ought to be going back to work when term restarts at the Uni, but the way I feel now I really doubt I would have the energy, its like someone took my batteries out. Anyway, enough of me rattling on, Ive discovered I can redecorate my house whilst seated, using my trusty hozelock garden seat, flip it upside down it becomes a gardening kneeler.not that I can do that any more. Nice to  have a hall way and kitchen that look clean cos as shielding ends soon my cleaning lady helper is coming back so I get my Tuesdays back when I can chill instead of fighting the hoover and the floor mop! YAY!

     

  • Hoapital rang - seeing m tomorrow wednesday for bone scan, and thensday for CT scan at a differednt hospital. freaking out a bit, seems very sudden, wish me luck. dont know how much more hassle I can cope with.I want my life bac k please!