Hi, not very good at this sort of thing so apologies if I waffle. It’s just over a year ago that I had a right hemi to remove a stage 3 tumour in my bowel. The day I was diagnosed the surgeon told me after having my op I should be back on my feet within 2-3 weeks and life would start getting back to normal. I had 9 weeks of being in constant pain, unable to lie down I slept on the sofa every night. My bowel wasn’t functioning right and I kept being told to take more and more laxatives to get things working, but I think now this was making it all worse. After being x-rayed and re-scanned it showed a build up but didn’t really explain why I was still getting so much pain. Despite this my oncologist decided to go ahead with chemo (I had spread to just one lymph node). I had IV first which wasn’t too bad and then two weeks of tablets at a reduced 50% dose because of my size. Just under a week of finishing the tablets I was in so much pain I ended up back in hospital again. After tests and a scan they took me back into theatre, no pre meds this time, I can still remember the pain of the anaesthetic going through. I had chemo induced enteritis of the small bowel and was very poorly. I spent 12 days constantly on drips while they tried to mend my body. I only had the one cycle of chemo and it nearly killed me. The day I was discharged the duty surgeon told me I was very lucky to be going home. I had lost so much weight I couldn’t open our car door. My next CT scan is next Wednesday and I feel so scared and no one here understands how terrifying it is. Some days I can’t think of anything else and can’t concentrate at work. My colonoscopy was due last month but no appointment has come yet, I have left a message for a nurse to call me. When will all this be over with xx
