Fed up with feeling scared

Hi, not very good at this sort of thing so apologies if I waffle. It’s just over a year ago that I had a right hemi to remove a stage 3 tumour in my bowel.  The day I was diagnosed the surgeon told me after having my op I should be back on my feet within 2-3 weeks and life would start getting back to normal.  I had 9 weeks of being in constant pain, unable to lie down I slept on the sofa every night. My bowel wasn’t functioning right and I kept being told to take more and more laxatives to get things working, but I think now this was making it all worse. After being x-rayed and re-scanned it showed a build up but didn’t really explain why I was still getting so much pain. Despite this my oncologist decided to go ahead with chemo (I had spread to just one lymph node). I had IV first which wasn’t too bad and then two weeks of tablets at a reduced 50% dose because of my size. Just under a week of finishing the tablets I was in so much pain I ended up back in hospital again. After tests and a scan they took me back into theatre, no pre meds this time, I can still remember the pain of the anaesthetic going through. I had chemo induced enteritis of the small bowel and was very poorly. I spent 12 days constantly on drips while they tried to mend my body. I only had the one cycle of chemo and it nearly killed me. The day I was discharged the duty surgeon told me I was very lucky to be going home. I had lost so much weight I couldn’t open our car door. My next CT scan is next Wednesday and I feel so scared and no one here understands how terrifying it is. Some days I can’t think of anything else and can’t concentrate at work. My colonoscopy was due last month but no appointment has come yet, I have left a message for a nurse to call me. When will all this be over with xx

  • Hi LisMar

    Sounds like you've been through the mill. Scans can bring on anxiety, I've lost count of the amount I've had but remember the anxiety I went through each time. Unfortunately I don't know much about your condition so can't advise but hope someone will be along in the morning who can relate. Fingers crossed scan goes well x

  • Hello Lismar,

                           Poor you,l have a good understanding of what you are going through at the moment, having been there myself.Those around give you,support and sympathy, but understanding is something you feel they cannot really grasp.No surprise here ,because your mind is currently travelling down a motorway breaking the speed limit, whilst those around you are trying to be normal in a 30 MPH zone.Finding normality and a settled  mind in what for you will be a frenzied,worrying existence is not the easist thing to achieve.But it is worth the effort trying to understand what works for you in getting there and making the difference on what you can affect and accepting what you cannot.

                                                                                                                                        ldentifying friends and foes helped me ,Cancer,its effects on my body and mind were the obvious enemies, friends, family and medical staff were the friends. After that it gets a little more hazy,chemo is your friend, but it can feel like your worst horror. Your best friend  and supporter that is all too often overlooked is your own mind. Most of what has happened is out of your control and you can do little to change what has been, like the results of an upcoming scan, they will be what they are. What you can affect is how you approach issues, and a relaxed mind with little stress and anxiety will help your body heal in a far greater way than most people can grasp.

                                  Its all well and good to talk about it but putting it into practise in another thing, but it is the one overriding thing that you can bring to this issue, if you can see that everything else is assistance then you will be on the way.Your scan results will be what they will be, but your handling of the situation will be what you choose for yourself.

                                                              l am under no illusion that you are not fighting a battle, but a war, and they unfortunately  tend to take a lot longer and need a longer term mindset. Always remember you are not looking down a seemingly never ending disheartening road with no end in sight, but too a welcome services along the way giving you you impetus to go forward to the end of your journey,that comes with the  understanding of positivity

                                                      Having seen my own visitor decamp from my bowel to my liver before the surgeons had chance to do some repairs,resulting in major demolition rather than some decoration as originally envisaged, l quickly realised l had to influence what l could ,as being my best chance forward---so what if scan results are slow in arriving,they will not be any different for my worrying, but my body and mind will be and not for the better.Six years on it has proved to be the best decision l have made

                                                        It is not going to be an easy ask but if you get to acceptance of your position,it will allow your body its best possible chance to heal, and for your focus to shift to your ambitions for your future. l wish you well and hope you can be kind to yourself,

                                                                                                                                      David