Living after the diagnosis

I was diagnosed 2yrs ago with breast cancer had my treatment and surgery so done . No I live now with waiting for my secondary diagnosis I live in dread is it just me are do you all do this .

  • Hi Helen

    My two year BC anniversary is coming up soon and I have to say I do not think of it returning. I'm not in denial that it could return its just that I don't see the point of worrying about it. All through my treatment I focused coming out the other end determined to get on with my life. I didnt go through all of that for nothing, if it comes back then it comes back and I will deal with it, I'm doing all I can to try and stop that from happening but at the end of the day its outwith my control, so I just get on with it.

  • Hi Helen you want to try to try to live your life as normal as you can without thinking of it,. It'll still come into your life now and again it can't be helped, but just carry on. Christmas blessings. 

    P.s if you want to check on me you'll find I'm noncurable just living with my "uninvited guest "plus looking after my disabled wife who needs 24/7 care....... Billy

    P. P. S I've been living with this since diagnosed Feb 2016 it can be done best wishes. 

  • Hi

    You are not alone.

    I was diagnosed as terminal with a salivary gland tumour in March.  Told surgery was too great an operation, removal of whole tongue and voice box, no quality of life afterwards, also told it would not respond to radiotherapy or chemo.  Got a brilliant oncologist who went for a high dose of radiotherapy but warned me it would only hopefully help but would not cure.  After all done, had check up, told the tumour had gone.  I dread my 6 weekly check ups.  Had 2 clear ones, such relief after each one followed by building anxiety up to the next one.  Last one in December revealed a problem with my vocal cord, told secondary lung cancer could be a cause, reluctantly offered a CT and asked why I wanted it as there was nothing they could do, explained that it was for my mental health.  Got the scan also early December, chased for results but got nothing before Christmas, finally got a call on Friday from the cancer nurses, no secondary cancer.

    Feel on an emotional rollercoaster with the lows very low and the highs very high.  I do try not to think too much about the cancer coming back but it is ever present just waiting to pounce when you least expect it.  I try to enjoy the good days but sometimes just shut myself away on the bad.  I do get cross but don't show it with people who tell me "you've got this, you can win".

    Positive as you can Helen but also don't beat yourself up when it gets too much.

     

    Much love and best wishes xx

  •  

    Hi Helen,

    This is something that everyone with a cancer diagnosis has to learn to live with.

    When I was diagnosed I was told that I had a very rare form of breast cancer, but, that if I had to get cancer, this was one of the best types to get, as it was one of the least aggressive. I had a lumpectomy 10 years ago. Less than a year later, I discovered another lump in the same breast and had a double mastectomy. My care team were amazed, as they said that this shouldn't happen with Mucosal Carcinoma.

    Well the fact is that it did and, I now live with the very real threat of recurrence, as I know that it has already happened once. However, although I know this to be a possibility, I agree with Magpiemaggie. I've dealt with it twice now and, if I need to do the same again, I know that I can - the only problem now is that there is nothing left to take away.

    Life is far too short to worry about things like this. Cancer has given me a new perspective on life. Every day is precious and I intend to live it to the best of my ability. There is no point in letting fear or worry take over, as neither will do anythingto help me.

    Kind regards,

    Jolamine xx