Letrozol

Hi I am normally really fit go to gym 5 times a week, but this drug is making all my joints ache and I struggle to get out of bed in the morning.

i had a different manufacturer of this drug for the first two weeks and was fine, new drug from Sun international is hell to live with.

i have read on line different manufacturers can give you different levels of this problem, gmhas anyone else found this?

My GP won't give me new prescription to change to first manufacturer, instead suggests antidepressants and 8 pain killers a day, feeling very fed up. 

Parents
  • I couldn't tolerate this and eventually got a second opinion and was told I didn't need it because of type and size of tumour etc.

    i couldn't get out of a chair unaided and was suicidally depressed.

    it seems to be part of standard protocol but there is a lot of evidence that women don't take it but don't tell their doctors

  • Hi 

    many thanks for your response my tumour was a grade 2 the size of a pea with no sores to lymph nodes, having a month of radiotherapy and 5 years if this drug.

    have always kept fit but now at the age of 59 feel like a 90 year old and finding it really tough to get up i the morning ️

     

     

  • Exactly the same as me and I had two years of tamoxifen the anastrazole which is very similar.i was told with tiny tumour and no nodes risk was infinitesimal and I am now 15 years on.you have to have quality of life !

  • That's fantastic news your 15 years on from your cancer and yes we do need to have a quality of life, and not just an existence.

    i am talking to the breast cancer nurse tomorrow so I will post the out come if that discussion.

    i found my lump on the 14/7 and had it removed the 12/9, I thought the drugs would be manageable, not life changing.

     

  • Hi been taking letrozole since August with no problems apart from occasional fatigue and aching joints . I am on it for 10 years and it does make a statistical difference please do not be discouraged we would not be prescribed this expensive drug if not necessary for long term survival .... let ‘s be grateful the nhs is there for us 

Reply
  • Hi been taking letrozole since August with no problems apart from occasional fatigue and aching joints . I am on it for 10 years and it does make a statistical difference please do not be discouraged we would not be prescribed this expensive drug if not necessary for long term survival .... let ‘s be grateful the nhs is there for us 

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