I couldn't tolerate this and eventually got a second opinion and was told I didn't need it because of type and size of tumour etc.

i couldn't get out of a chair unaided and was suicidally depressed.

it seems to be part of standard protocol but there is a lot of evidence that women don't take it but don't tell their doctors

Hi 

many thanks for your response my tumour was a grade 2 the size of a pea with no sores to lymph nodes, having a month of radiotherapy and 5 years if this drug.

have always kept fit but now at the age of 59 feel like a 90 year old and finding it really tough to get up i the morning ️

Exactly the same as me and I had two years of tamoxifen the anastrazole which is very similar.i was told with tiny tumour and no nodes risk was infinitesimal and I am now 15 years on.you have to have quality of life !

That's fantastic news your 15 years on from your cancer and yes we do need to have a quality of life, and not just an existence.

i am talking to the breast cancer nurse tomorrow so I will post the out come if that discussion.

i found my lump on the 14/7 and had it removed the 12/9, I thought the drugs would be manageable, not life changing.

That's fantastic news your 15 years on from your cancer and yes we do need to have a quality of life, and not just an existence.

i am talking to the breast cancer nurse tomorrow so I will post the out come if that discussion.

i found my lump on the 14/7 and had it removed the 12/9, I thought the drugs would be manageable, not life changing.

Hi been taking letrozole since August with no problems apart from occasional fatigue and aching joints . I am on it for 10 years and it does make a statistical difference please do not be discouraged we would not be prescribed this expensive drug if not necessary for long term survival .... let ‘s be grateful the nhs is there for us 

I agree it is a wonderful service the nhs gives us and j know this is the best drug for breast cancer.

i don't mean or intend to come across as moaning, I'm just finding it hard to cope with daily stuff and be a carer for my don when my joints are so stiff.

but count myself as very lucky and blessed.

i know it is v hard to come to terms with all the meds was taking none before i was diagnosed in jan also on biphosphonates and vitamin D hope it gets better for you have down days too ! 

I think hospital doctors just follow protocols not people.Letrozole actually is for oestrogen -sensitive women and I looked up the original research when they were trying to poison me with.Something like1% reduction of a 1% risk

HI Sallysweetie - not sure if you're still on this forum but will try anyway. My partner has just had a lumpectomy and is considering not taking further treatment with Letrozole for the same reason as you stopped taking it. How are you now after 3 years without Letrozole? My partner is also thinking of not accepting this treatment because of the side effects on her quality of life and the small benefit in terms of quality years of life.