I am currently waiting for a call from the breast clinic to advise me about stopping tamoxifen after 10 years. Hoping not to suffer as alot of others have!

Hi  sorry I missed your msg until now! We all react so differently so I don't think there's a silver bullet. I personally came off it straight away as I recall a study that showed being on Tamo >10 years increased the risk of endometrial Cancer. Hope you're doing as OK as possible 

I feel your pain here... It is terrible.  I have only just came across this thread and joined.  I stopped tamoxifen last year after 10 years .. I had never felt so tired ..ever .and it's gotten worse.  Days I just can't be bothered to even get dressed.. I feel I'm so exhausted drained I get really bad aching muscles mainly in my thigh muscles and wrists it keeps me awake at night so I don't sleep properly.  I feel agitated with myself for not being able to be who I was before .always on the go  ever spent half my days laid on my bed.  It's causing depression now and I get very emotional I feel I'm losing a grip on everything and it's very difficult to cope and manage.  Thankfully my children are older and they can help me.  But doesn't make me feel any better I feel a failure. I'm letting everyone down.  I have two 12 hour shifts a week which I really struggle with now but I have to work as I'm a single mam.  Everything just seems so so hard.  I think the medical people need to re evaluate the effects when stopping tamoxifen because this is clear it is this that is causing all these issues for us people.   Doctors should be made aware of this as it is a serious serious thing to feel so withdrawn from the world and a failure to yourself and family.  Terrible.

GP appointment is what I need now and to discuss this properly. Thank you to each and everyone of you for posting in this thread its a huge eye opened to realise and now understand it is the medicine that has caused these awful things 

Love and best wishes to you all    ️