Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

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  • Hi

     

    i am slightly hijacking this thread, off topic...,just wondering if any of you ladies who have been on tamoxifen for 10 years started out as node positive, grade 3 diagnoses? I am recently diagnosed and it feels almost impossible I will be here in 10 years so guess I'm looking for some hope from long-term survivors. (HER2 neg/eR positive) 

     

    thanks 

  • I'm still here! Same diagnosis as you, in 2012, at the age of 36. Just coming off tamoxifen now, hence why I found this chat...

     

    It's all hugely overwhelming at first - one day at a time, OK?

  • This was just what i needed this morning. On day 5 of first chemo and in a complete black hole of feeling it can't be worth it.

     

    thank you so much xxx

  • The first chemo is hideous - the body is in shock! They get a bit easier after the first one. Eat little and often, keep taking your anti sickness meds - metaclopramide is rubbish so ask your team for something better if you're still feeling rotten. It will pass, I promise x
     

    Plan something nice to do for the end of next week - always good to have something to look forward to, when you come out the other end of the cycle. We always had a nice meal out when I was feeling at my best, at the end of each cycle. Gives you something to head for...
     

    hang on in there, OK? It is most definitely worth it, even if it doesn't feel like it right now. One day done is one day closer to the end of treatment. 

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  • The first chemo is hideous - the body is in shock! They get a bit easier after the first one. Eat little and often, keep taking your anti sickness meds - metaclopramide is rubbish so ask your team for something better if you're still feeling rotten. It will pass, I promise x
     

    Plan something nice to do for the end of next week - always good to have something to look forward to, when you come out the other end of the cycle. We always had a nice meal out when I was feeling at my best, at the end of each cycle. Gives you something to head for...
     

    hang on in there, OK? It is most definitely worth it, even if it doesn't feel like it right now. One day done is one day closer to the end of treatment. 

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