Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

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  • Hi

     

    i am slightly hijacking this thread, off topic...,just wondering if any of you ladies who have been on tamoxifen for 10 years started out as node positive, grade 3 diagnoses? I am recently diagnosed and it feels almost impossible I will be here in 10 years so guess I'm looking for some hope from long-term survivors. (HER2 neg/eR positive) 

     

    thanks 

  • Dear Hel39

    I had that diagnosis in 2008 aged 44, I was told that most pre menopausal tumours are grade 3, so try not to worry. I had the full range of surgery/ chemo/ radio/ tamoxifen and am now fit and well, saw my children grow up and now have a granddaughter. 
    Wishing you all the best for the future xx

  • Thank you so much. It gives me so much hope to read these posts. It was in four nodes after clearance - 2 micromets and 2 macro. Had a bit of a spiral after reading this and terms like 'lympho-vascular invasion' and 'extra-capsular spread' on my pathology report but trying to stay positive still. Start chemo in a couple of weeks.

    thabk you again. Means a lot.

     

    xx

  • I had 3 nodes and the lymphovascular invasion, don't remember any more details. It's a rough 9 months but you'll be good by Christmas :)

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