Like early posts I have had Radiotherapy with chemo for bowel cancer 5 plus years ago.

Increasingly worsening pain with right hip. MRI last week showed end stage osteoarthritis. Hips BEFORE treatment perfect as per pictures taken. 

It does not appear to be widely known that radiotherapy can cause avascular necrosis. The elasticity of soft connective tissue is also seriously compromised. Physiotherapist and nurses do seem to have some awareness of same. 

I have worked hard on same for past years but now know I need to do something about my hip. Experts are not rely familiar with long term effects of treatment. Educate them. Make noise. Do not just accept it so improve as I did.

Best of luck to you all. 

Hi

I had RT last year for a pelvic sarcoma and have been experiencing all the symptoms others here have experienced. I also exercise and walk but it has started to become quite painful. I had began to wonder if the RT had contributed to this as I did not have this problem before treatment. It's comforting to know that it isn't just me and the feelings I'm getting are real. 
 

I have been taking painkillers at night to help me sleep as I wake up during the night with aching legs and can't get back to sleep as it's uncomfortable. So far I haven't raised this with my oncologist but I certainly will now and hope to be taken seriously. A dull Toothache is exactly right and continuous I find especially at night. 
 

Let's hope we can bring this to the attention of those who need to know about this particular side effect and something can be done. I've always prided myself on being very active (I'm in my 70s) but that has never stopped me from all kinds of activities until now. 
 

Regards MagsT

I get this ache / pain in me left side of the pelvis, which is where I had my Radiotherapy for 30 sessions. I'm hoping it's the bone starting to heal itself but I'm unsure. I'm going to mention it to my doctors that I will see start of next month

Hi

I was diagnosed with endometrial cancer in June 2019 I had a full hysterectomy followed by 25 sessions of radiotherapy and 3 of bracatherpy. 
 

a few months after treatment I had to have a repair done to my vagina and shortly after I started experiencing pain in my back and especially my right hip, leg and buttock. I've had mri and have been told it's soft bones caused by radiotherapy and was given an appointment with physiotherapist. I've been told the pain will go but it's been going on for nearly a year and not improving,walking up hills and stairs is difficult, I have even given up my job.

im at a loss with it all I know the cancer has not returned but I can't seem to move on with things.  Does the pain go away? I've intermittent problems with my bowel and stomach to.

I would really appreciate any advice ad I feel quite alone with this and embarrassed with my problems walking etc. 

Hi, I'm about to have same treatment as you. 

Had lumpsectomy on 27th Sept, high grade dcis

radical hyst including ovaries 31st Oct, for 1b2 cervical got upped to stage 2 as had spead to fallopian tube, so started chemoradiation 30th December.

Got told was only doing uterine bed and lymph nodes, avoiding most of bowel and bladder, however yesterday was given and told they would be radiating full pelvis. 

Menapause sucks, vaginal altraphy is terrifying, they don't want to give hrt, which would stop a lot of side effects, so feel compelled to do Internet research. 

Don't know whether this helps, with regard to bowels, vit d and probiotics, reduce sugar, up veg, think med diet

With regard to pain try msm, but high dose, good for pain,

bones, joints, arthitus, brain lol, presume your already taking calcium. And vit b complex. Vit d also good for bones. 

Above all good for hair and skin as well. 

Please share anything you may know, my whole life seems to be disappearing before my eyes, the side effects of cancer are more terrafying than the actual bleedin cancer. 

Frightened about loosing my boyfriend, my job, I work for a large warehouse and have to return to work at some point. Personality has done 180 degrees. 

At moment seriously thinking about stopping treatment as if there is no quality of life after, what is the point of it all. 

Please excuse spelling as just woken up with hot flush, feel sick from chemo and had no coffee as yet.

Feeling generally *** off and sorry for myself. Outwardly it's Xmas and trying to be miss positive, cried in front of boyfriend and he was quiet for a week, as he's never seen me upset.

Started off really positive, found out got two cancers being treated at same time at beginning of Sept, was expecting a promotion at work, now to this lol, 51 now, biologically expecting to be 81 by time they have finished. 

Mentioned sex, was told other stuff we can do.. 

I dunno...... 

Happy New year. Lol

PEACE

I had anal tumour two yrs ago have had radiotherapy and chemo tabs but now have really bad pain in hip have seen gp and had xray and was told it is osteoporosis wondering if this is because of radiotherapy now walking with stick. I was on hrt for 12 yrs thought this was meant to help

Hi Sand, 

I have just been diagnosed grade 2 stage 2 endometrial cancer n will have external n internal radiotherapy in Jan. 

I would be grateful if you could tell me more about your treatments. Did you have your lymph nodes checked or sampled? How long did you have to wait between your hysterectomy to your first radio session? Did you have MRI or other scans before the hysterectomy or before the radiotherapy? How are you coping with the side effects now? 

Hope you are doing well. 

Many thanks!

Chui

Hi

i was diagnosed with womb cancer (grade1 stage 1) in December 2019. I had my hysterectomy in the January and started radiotherapy in April.

I believe my lymph nodes were checked at the time of the hysterectomy and were ok.

during the radiotherapy, my existing sensitive bladder condition worsened, and I developed a urethral structure. My long term issues have been creaky hips/ stiff hips/ vaginal dryness/

vaginal atrophy/ painful knees. Some of these issues could be due to having come off HRT which I was taking for over 20 years following an early menopause. My urethral stricture has been the worse of the side effects. I had a urethral dilation and self catheterised for 6 months, then I had a urethraplasty , and 3 more dilations. At the moment I don't know what the long term prognosis is.

have had MRI and or CaT scans at intervals since the radiotherapy and do far do good!

please feel free to ask any questions-glad to help.

Thank you Linfo. 

May I ask if you had MRI or other scans before your hysterectomy ? 

I hope your problems are managed well by the treatments. 

Best wishes, 

Chui