Hip problems post pelvic radiotherapy

In July 2013 in was diagnosed with Endometrial stromal sarcoma, I underwent 26 sessions of pelvic radiotherapy followed by two doses of brachytherapy.

soon after finishing the treatment I noticed a tightening around my hips and altered sensations in legs. Over the last few years I have had constant tightness in my hips but I have also experienced several episodes of being unable to move my legs properly, having to think about moving my legs when I’m walking, unable to lift my legs properly and an dull toothache like pain in my legs.

The drs seem unable to give me an answer as to why this is happening, I am sometimes made to feel like I’m making it up- which is very frustrating!

 I am very motivated to improve my fitness, I do Pilates and use an exercise bike but it is always a bit of a struggle.

l wondered if anyone else is experiencing similar problems post pelvic radiotherapy 

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  • Hi

    I had RT last year for a pelvic sarcoma and have been experiencing all the symptoms others here have experienced. I also exercise and walk but it has started to become quite painful. I had began to wonder if the RT had contributed to this as I did not have this problem before treatment. It's comforting to know that it isn't just me and the feelings I'm getting are real. 
     

    I have been taking painkillers at night to help me sleep as I wake up during the night with aching legs and can't get back to sleep as it's uncomfortable. So far I haven't raised this with my oncologist but I certainly will now and hope to be taken seriously. A dull Toothache is exactly right and continuous I find especially at night. 
     

    Let's hope we can bring this to the attention of those who need to know about this particular side effect and something can be done. I've always prided myself on being very active (I'm in my 70s) but that has never stopped me from all kinds of activities until now. 
     

    Regards MagsT

  • I get this ache / pain in me left side of the pelvis, which is where I had my Radiotherapy for 30 sessions. I'm hoping it's the bone starting to heal itself but I'm unsure. I'm going to mention it to my doctors that I will see start of next month

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