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Hip problems post pelvic radiotherapy

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In July 2013 in was diagnosed with Endometrial stromal sarcoma, I underwent 26 sessions of pelvic radiotherapy followed by two doses of brachytherapy.

soon after finishing the treatment I noticed a tightening around my hips and altered sensations in legs. Over the last few years I have had constant tightness in my hips but I have also experienced several episodes of being unable to move my legs properly, having to think about moving my legs when I’m walking, unable to lift my legs properly and an dull toothache like pain in my legs.

The drs seem unable to give me an answer as to why this is happening, I am sometimes made to feel like I’m making it up- which is very frustrating!

 I am very motivated to improve my fitness, I do Pilates and use an exercise bike but it is always a bit of a struggle.

l wondered if anyone else is experiencing similar problems post pelvic radiotherapy 

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    Hi

    i had a similar series of treatments a year ago, and have had bladder issues since which are being dealt with seperatly. More recently, I have noticed I am stiff in the ankles and hips, my hips make a clicking noise when I go up stairs, my lower back makes a noise when I twist and turn. When I get out of bed or get up from sitting, I am stiff. I didn't have any of these issues before the RT.

    i just found your post and was wondering if you have managed to get any help or how your condition has progressed?

  • Offline in reply to linfo

    Hi,

    I was just scrolling through google looking for info on post radiotherapy hip pain and found this thread.

    Its been 3 and a half years since my radiotherapy and chemo, which I had to my pelvis, and only now I am starting to really feel the effects. I’ve had some hip pain which wasn’t persistent but now it seems to have come with a vengeance. The pain is directly aligned with where I had the radio, I know because of the tattoos on my hips.

    I wouldn’t let anyone dismiss the idea of post radio pain, it’s very much a real and recognised thing. I’m going to ask for it to be checked out because I want to be treated correctly, I’ve got enough going on with st 4 bloody cancer without wanting to deal with late side effects too.

    I hope everyone here gets the attention they deserve and some relief from the pain...much love,

    Jo x

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  • Offline in reply to linfo

    Hi,

    I was just scrolling through google looking for info on post radiotherapy hip pain and found this thread.

    Its been 3 and a half years since my radiotherapy and chemo, which I had to my pelvis, and only now I am starting to really feel the effects. I’ve had some hip pain which wasn’t persistent but now it seems to have come with a vengeance. The pain is directly aligned with where I had the radio, I know because of the tattoos on my hips.

    I wouldn’t let anyone dismiss the idea of post radio pain, it’s very much a real and recognised thing. I’m going to ask for it to be checked out because I want to be treated correctly, I’ve got enough going on with st 4 bloody cancer without wanting to deal with late side effects too.

    I hope everyone here gets the attention they deserve and some relief from the pain...much love,

    Jo x

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