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Hip problems post pelvic radiotherapy

Franconference
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In July 2013 in was diagnosed with Endometrial stromal sarcoma, I underwent 26 sessions of pelvic radiotherapy followed by two doses of brachytherapy.

soon after finishing the treatment I noticed a tightening around my hips and altered sensations in legs. Over the last few years I have had constant tightness in my hips but I have also experienced several episodes of being unable to move my legs properly, having to think about moving my legs when I’m walking, unable to lift my legs properly and an dull toothache like pain in my legs.

The drs seem unable to give me an answer as to why this is happening, I am sometimes made to feel like I’m making it up- which is very frustrating!

 I am very motivated to improve my fitness, I do Pilates and use an exercise bike but it is always a bit of a struggle.

l wondered if anyone else is experiencing similar problems post pelvic radiotherapy 

Parents
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    Hi Fran',

    I had radio to my pelvis for a plasmacytoma, 10 sessions. I've found that I have stiffness in the hip area that can become pain or what I'd expect to be pain, manifesting as stiffness.

    I'd say similar but slightly different motor symptoms as well. I've told the medicos but only as info rather than trying to find out why.

    I have definite peripheral neuropathy in both legs/feet and around the pelvis/lower abdomen, including the genitals.

    I think chemo is at least partly responsible, as well as a long term dodgy back.

     

    Regards

    Taff

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    Hi Fran',

    I had radio to my pelvis for a plasmacytoma, 10 sessions. I've found that I have stiffness in the hip area that can become pain or what I'd expect to be pain, manifesting as stiffness.

    I'd say similar but slightly different motor symptoms as well. I've told the medicos but only as info rather than trying to find out why.

    I have definite peripheral neuropathy in both legs/feet and around the pelvis/lower abdomen, including the genitals.

    I think chemo is at least partly responsible, as well as a long term dodgy back.

     

    Regards

    Taff

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