Hi

I have now been on Palbociclib and Letrozole since March 2018 after developing bone mets in my pelvis a year after being diagnosed with breast cancer. I have discovered that the brand name on Letrozole makes a huge difference to how I feel so it might be worth trying different brands until you find one that suits. For me I seem to be fine on Accord but some of the others have been horrendous. You could ask the nurses which one seems to give the least side affects x

Hi Judy,

I hope that all goes well with your appointment tomorrow and, that your oncologist can suggest a more suitable treatment for you.

Kind regards,

Jolamine xx

HI Scandia

Hope you are ok. Thanks for replying re Letrozole. I am on the Accord one so hopefully I will settle down in a few weeks. The nurse told me to give it at least 3 months.

C x

Hi

I am so sorry that you have now been diagnosed again. What a shock for you. Nobody knows how medication is going to affect them. Don't beat yourself up because you need your strength to beat this again. I send you a virtual hug and best wishes. You can do this.

C x

I am so sorry to read this. No one will be able to say for certain if that's the case.

you have to concentrate on your next steps now, try and stop second guessing, it won't do you any good. 

Get back on that rollercoaster and there will always be support on here....it's been a great comfort to me and it will be for you too....xxxxx

Hi Fayzed,

As both Harvell and Marlyn have said, there is no telling whether or not your actions have been responsible for your latest diagnosis. There is no point in beating yourself up about this. Instead you need to keep that strength to fight your latest problems.

We are all right behind you in this. Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Everyone, 

I've been on Letrozole for almost a year. I feel the side effects are getting worse. The ones I'm struggling with are the low mood, irritability and generally feeling unwell. I had pretty bad joint pain but found that taking turmeric capsules that has improved greatly. I am seriously thinking about stopping taking Letrozole because I am so down.

I have thought about this long and hard. I feel quality of life is more important. 

Nora x

I found Letrozole awful.  Was on it a year.  Complained to my oncologist who changed me onto Anastrozole.  Slightly better at first.  Was on that for 3 years.  But felt like an old woman.   Stiff & painful joints.  So I kept taking myself off it for a month at a time.  Oncolgist concerned about this so, reluctantly, I changed onto Tamoxifen.  I say reluctantly as had friends who'd had problems with it (cancer of the womb & eyesight issues).  I've been on it coming up a year.  What a difference!  I can move again, walk downstairs on a morning.  There are side effects with it, of course.  I notice my head hair thinning & gaining fuzz facial hair at sides after nearly a year on it.  Will get some Veet on it. :)  But definitely feel better on it than the others.  I've got to be on meds for 7.5 yrs.  You should ask your consultant to change.