Sorry to hear you have problems with your heart, I hope the tests give you some answers.

fianlly ,someone else speaking about the short term memory issues that can come from chemo! I also had/have some issues with short term memory and I've often felt alone with that so it is good to speak to someone else that had that effect, it seems like its rarley spoken about. 

Do you not have a aftercare team? you should of been refered to one after being discharged from specialist. 

Hi, sorry for such a late reply. 

Im sorry to hear you've dealt with so many after effects. how are you doing now? seeing as this was posted many months ago. 

Glad to hear you have still been able to live a happy and active life despite the struggles. I used to be very active before dealing with chronic illness , I have hope to get back to that someday.

anonoymous123.

Hi never posted on this site but read though this feed and so many things are relatable and I thought I was on my own! 
 

I had ALL when I was 10 in 2004 and had chemotherapy treatment till around 14. I have a list of issues that have slowly grown as I am getting into adulthood (26 now). I too suffer from memory issues but mine seem to be long term memory as well as spacing out throughout the day. I suffer from anxiety which I take propanarol for and aspects of PTSD. I also have been to the doctors several times due to my iron always being on the low end of the "normal" scale even when I was put on high grade iron tables. Because of this I get fatigued and bruise easily which when being a cancer survivor makes me unsettled. 
 

I have tried looking into long effects online but there is hardly any resources. I've felt so alone with these issues but it's comforting reading all your posts as I don't know anyone who is a childhood survivor so have felt very alone with my thoughts and worries. 
 

I was released when I was around 18 and since then I've had no support on my health and trying to get gps to understand why I'm worried or asking for a blood test is a constant struggle.

If anyone wants to chat or anything I would love to talk more about your experiences

Hannah :)

Hi,

I had treatment for ALL back in the 1980s and would be happy to talk to anyone about long-term effects. I've had a quite obscure list of them and from my personal experience, I have found that the Cancer doctors I was under were very ignorant and unprofessional when I brought up issues that were having a huge impact on my quality of life. I can totally understand how it feels when you are asking for someone's help because, for me, I was a child and have no knowledge of what was done or the side effects. Feel free to add me as a friend and drop me a message.

_S

Hi, I know you posted this a while back but I'm sorry to hear you've suffered from the effects so much , I hope you are doing better now and have some answers. 

Hi Hannah, Sorry I've only just seen your comment, I've only just logged in here after months of not being on here. 

I noticed you had chemo for a particulary long time, I had it for a bit over 2 years and I hear that's usually around the ammount of time for ALL, I'm not supprised your particualry suffering from long term effects , especially after having it for such an ammount of time. 

I think the issues with your long term memory are probably part of your ptsd also, I've suffered with it myself so have read quite a bit about it over the years as well as the after effects of the chemo as I felt very alone with it. I have managed to find some good info but yes there isn't a huge ammount. 

Sorry to hear you didn't recieve much support afterwards, were you never refered to aftercare? I was but don't go much at all these days. Usually my doctors are quite good if I do have some new symptoms they do usually take my history into account although ive had some less positive expereinces too.

Be happy to hear back from you, good to conect to others , espcially around my age (Im 26) who had the same type as me. Feel free to inbox me anytime if you want to chat some more or just respond here. :)