Cancer Research UK main site
  • Replies 2 replies
  • Views 206 views
  • Users 0 members are here

Struggling with watch and wait

Lindyloo38
Offline

Recently had treatment for rectal cancer stage 3b. Treatment finished in March 2026  

Now on the watch and wait regime but finding it difficult as my tests and appointments are all done a month apart so infact I am actually having something done once a month. Whether it's blood tests,  MRI, CT, sigmoidoscopy or a visit to the specialist. I often find myself disappointed when the post arrives and I don't have my next appointment for a test or consultation. Struggling a little I must admit. Finally plucked up the courage to go to a Maggies centre at my local hospital.  While I have family and friends I often wonder if I start to talk about cancer do they just think I should be grateful rather than worried about it.

  • Hello Lindyloo38

    I'm sorry to hear about your diagnosis and that since completing active treatment earlier this year, you now find yourself struggling with the ongoing battery of tests, scans and appointments. I can assure you that you are not alone in feeling this way. 

    Scanxiety is a real phenomena and for many people it's only once active treatment is finished that the enormity of the diagnosis and all that they have been through really begins to hit home. It's good to hear that you've been to your local Maggie's centre. I know you will be able to access support from their volunteers, staff and other patients there and hopefully, as time goes on, you'll begin to feel more settled about all that you've been through. 

    I'd also say that if you still have contact with your specialist cancer nurse, then do let them know about the toll that the watch and wait regime is taking on you. Hopefully they can give you some reassurance. 

    If you'd like to chat with one of our nurses about things, then you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

    Sending my best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline in reply to Moderator Jenn

    Thanks Jenn for your reply.  I know that there are plenty of support groups just like you but it is often just plucking up the courage to join in.  Cancer is a very lonely disease.  You get cancer but not everyone has the same treatment.  When treatment is finished you expect to get back to normal and so does everyone else, so when you don't it can be hard on everyone.  I guess I'm trying to say is that this bit, the after bit is the hardest part. 

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.