tamoxifen - I can finally stop taking them but feeling nervous about possible side effects

Hi, i had breast cancer in 2013 and had chemo, radio, herceptin and then tamoxifen for 10 years.   Just seen consultant who has said i can now come off them, asked him what side effects may i get and i got told none and you may well feel a lot better!!!  from what i have read on here that doesnt seem to be the case....so watch this space....

  • It's great to hear you can stop taking Tamoxifen Darcymay but naturally, you must be having some mixed thoughts and feelings about this.

    As you've mentioned, there are quite a few discussions within the community about coming off Tamoxifen with mixed results but fingers crossed when you do stop that if any side effects do come about that they will be easy to manage.

    You're very welcome to join in on any of the discussions you've come across so far as our community are very supportive and will do all they can to help as you navigate the next part of your journey.

    We also have a team of cancer nurses you can talk things through with on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They will do what they can to answer any further questions you have about this, and address your concerns.

    We're thinking of you Darcymay and hope everything goes o.k.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi DarcyMay,

    I'm delighted to hear that you can finally come off Tamoxifen after 10 years. I had a lumpectomy in 2010 and took Tamoxifen for 1 year. I then discovered another lump in the same breast, a year after my first surgery and had a double mastectomy. As the Tamoxifen wasn't successful in keeping the cancer at bay, I then took Letrozole for 6½ years - at that time hormone therapy was mostly prescribed for 5 years. I had absolutely no problems when I stopped taking these and did in fact feel considerably better than I did when I was taking them.

    I hope that all goes well for you and that you don't have any problems either.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx