Treatment plan post mastectomy for DCIS

Hi all lovely ladies. I was diagnosed with 15mm low grade dcis and opted for double mastectomy due to family history ..maternal grandmother and great aunt had breast cancer. Post mastectomy it was upgraded to 18mm intermediate /high but no microinvasion. Surgeon believes no further treatment needed. Genetic testing only found an u certain variant so not really considered to have the main genes. Not sure why I still don't feel enough is done. Maybe I am overstressing..I asked the surgeon if I do needto go on Tamoxifen and he believes no. Not really sure what to do. Wanted to see if anyone has been in this situation?

Parents
  • Hello Happygirl1981,

    Be diligent and always check yourself for lumps etc. I had a very similar scenario to you. I had a double mastectomy for intermediate grade DCIS. I also enquired about adjuvant treatment and follow up screening.  I was also given replies that if anything I had been over treated,  told to relax and enjoy life. I had a similar family history to you, and no gene predisposition was found on genetic testing.  3 years later, I found a lump in my axilla (arm pit). Even my surgeon dismissed it. I then had months of persisting to be seen again. It turned out to be a highly aggressive grade 3 breast cancer that had already spread to nearly lymph nodes. I then had 15 months of gruelling treatment with many long term side effects.

    It is not my intention to scare you, but always listen to your body and if you are worried about anything get it checked. 

    Good luck with everything. 

  • Hi Anna

    How are you doing?

    I’m so sorry to hear that you weren’t listened to and then to find such an aggressive cancer.

    That’s tough!

    I’ve had treatment for DCIS and have started doing monthly checks.

    I keep a diary of my concerns and the advice I’m given.

    Throughout my life, I have come to know cancer knows no bounds. Many loved ones have now passed on and have had difficult times with cancer. 

    My mum had treatment for an invasive kind of breast cancer and has been OK for the last 30 years.

    If you can, I’d really like to hear from you.

    Take care

    X

Reply
  • Hi Anna

    How are you doing?

    I’m so sorry to hear that you weren’t listened to and then to find such an aggressive cancer.

    That’s tough!

    I’ve had treatment for DCIS and have started doing monthly checks.

    I keep a diary of my concerns and the advice I’m given.

    Throughout my life, I have come to know cancer knows no bounds. Many loved ones have now passed on and have had difficult times with cancer. 

    My mum had treatment for an invasive kind of breast cancer and has been OK for the last 30 years.

    If you can, I’d really like to hear from you.

    Take care

    X

Children
No Data