Treatment plan post mastectomy for DCIS

Hi all lovely ladies. I was diagnosed with 15mm low grade dcis and opted for double mastectomy due to family history ..maternal grandmother and great aunt had breast cancer. Post mastectomy it was upgraded to 18mm intermediate /high but no microinvasion. Surgeon believes no further treatment needed. Genetic testing only found an u certain variant so not really considered to have the main genes. Not sure why I still don't feel enough is done. Maybe I am overstressing..I asked the surgeon if I do needto go on Tamoxifen and he believes no. Not really sure what to do. Wanted to see if anyone has been in this situation?

Parents
  • Sounds like you have had max poss treatment for this pre cancer - a bilateral mastectomy for that lev,e of family history and what sounds like is not Brca mutation is a lot of surgery, this is not recommended for the limited disease diagnosed so you have already gone over what is recommended. You should draw a line under it and enjoy life and don't give it another thought imo.  Hormone therapy will only make you feel awful and affect your quality of life for no benefit and is not needed for the dcis that was found.  I know hard when you have had an undexepcted diagnosis but be thankful that what was found was actually stage 0 , barely cancer in effect and you should focus on your general health and well being to keep you well and strong and be thankful. All the best

Reply
  • Sounds like you have had max poss treatment for this pre cancer - a bilateral mastectomy for that lev,e of family history and what sounds like is not Brca mutation is a lot of surgery, this is not recommended for the limited disease diagnosed so you have already gone over what is recommended. You should draw a line under it and enjoy life and don't give it another thought imo.  Hormone therapy will only make you feel awful and affect your quality of life for no benefit and is not needed for the dcis that was found.  I know hard when you have had an undexepcted diagnosis but be thankful that what was found was actually stage 0 , barely cancer in effect and you should focus on your general health and well being to keep you well and strong and be thankful. All the best

Children
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