CIPN - Neuropathy after chemo

Hi all

I was diagnosed with a Mediastinal Germ Cell Tumour  in July and under went 15 weeks of intensive  chemo completed in November. It appears to have been successful but I'm awaiting a decision on surgery to complete the process.The Chemo  was CBOP - BEP and took a significant toll on my health, whilst most of the side effects have eased I'm left with Neuropathy  in both my feet and hands. This has changed little since the Chemo ended 8 weeks ago, has anyone else suffered similar side effects and how long did the neuropathy last?

I've been informed that it may never subside  but in many cases it will fade with time. I have no pain but numb feet and hands are making recovery difficult and I lost a lot of leg and arm muscle during the chemo treatment.

Any experience with CIPN (chemical induced peripheral neuropathy) would be useful 

 

John

Parents
  • My symptoms arrived 2 weeks after chemo finished and now has subsided 2 weeks after ! Apart from in the morning when I shower and wash my feet I feel numbness but that's it I was worried too but it's ok

  • I've been exactly the same !! 2 weeks after chemo I've had so many symptoms, some that your ment to experience early on like taxol toes ! I also only have the numbness in the shower in the morning ! Glad I'm not the only one thank you 

  • Is it just me, but I find since tread has ending things have become very lonely it's become more scary as time goes on but expected it to be the other way around ! It's very hard recovering more than I have ever expected 

  • Hello 8thseptember1984,

                                           No its not just you,most people will be exactly the same.You think the longest hardest part is surgery/chemotherapy,but the reality is that the surgery is relatively short and sharp.You expect the chemo to drag you down whilst receiving it,but expect a fast improvement once you finish the course of treatment.In fact your body and all your immune systems have taken a cumalative pasting and will take several months of a slow healing process before you really become aware of significant improvement.Of course you are now doing this away from the prevous stream of healthcare givers amd it suddenly your life can become very flat without all the previous bustle. Support groups are good and if you access to a local Maggies centre then l can definitely reccommend visiting them,they made a big difference to me,

                                                                                                    Hope your rehabilitation goes well and you enjoy a good recovery,

                                                     David.

  • Thank you , it's very reassuring! I shall have a little look 

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