Hello JohnRM,

I'm sorry you've been experiencing these sides effects. There's information on peripheral neuropathy here, as well as tips to help manage it. It's also important to keep your doctor informed of any changes or if you have any questions.

I hope this helps in some way,

Moderator Anastasia

Hello John,

               l experienced the same with both hands and feet affected.The hands came back to me over a period of 6-8months,but the feet never have.It has taken about five years for the brain to give  in constantly reminding of loss of feeling and pain.It probably took three years for me to stop stubbing my toe and tripping myself up,thankfully being an ex bike racer l learnt to fall rather well,so l managed to put that to good use during that period of time.Now l only notice it when l climb into bed and only for a while before the mind blanks it out once more.Whilst this may be considered the bad news,it remains a constant and welcome reminder of what a lucky boy l have been to still be here when many others around me during treatment unfortunately have not been able to do the same.

It does not stop me from doing everything l wish ,and l lead a very active life,l just made a concious decision early on that l rule it and not the other way around. l just got on with it and never ever said l could not do anything because of it and l am now reaping the benefit of doing so.

 l have to say that nothing much l was told would help,did,so l just paid attention to how l placed my feet and got on with it.When painful,rest, then go again,and repeat constantly,but l accept thatr l had one of the problem cases of it.

     Good luck with yours and it could well be in the past for you in six months time,

                                                                                                                                      David

Hi David

Thanks so much for the reply,  like you I'm also a "biker" and I'm looking forward to summer when I can hopefully  get back on it!

My cancer has responded well to the Chemo and I am awaiting surgery as the final stage to remove all traces ( fingers crossed). The neuropathy  doesn't cause me any pain but as I lost a huge amount of leg muscle during chemotherapy  I find walking difficult,  the neuropathy makes it worse. 

Good to know it may take several  months to return so I'll just continue and hope it comes back. 

At age 57 the recovery may take a little while but hopefully things will return, like you I feel lucky in many ways, my cancer was rare, hasn't spread and responds well to treatment and so far all has gone to plan (apart from the neuropathy)

Thanks again and all the best for the future

John

My symptoms arrived 2 weeks after chemo finished and now has subsided 2 weeks after ! Apart from in the morning when I shower and wash my feet I feel numbness but that's it I was worried too but it's ok

I've been exactly the same !! 2 weeks after chemo I've had so many symptoms, some that your ment to experience early on like taxol toes ! I also only have the numbness in the shower in the morning ! Glad I'm not the only one thank you 

Is it just me, but I find since tread has ending things have become very lonely it's become more scary as time goes on but expected it to be the other way around ! It's very hard recovering more than I have ever expected 

Hello 8thseptember1984,

                                       No its not just you,most people will be exactly the same.You think the longest hardest part is surgery/chemotherapy,but the reality is that the surgery is relatively short and sharp.You expect the chemo to drag you down whilst receiving it,but expect a fast improvement once you finish the course of treatment.In fact your body and all your immune systems have taken a cumalative pasting and will take several months of a slow healing process before you really become aware of significant improvement.Of course you are now doing this away from the prevous stream of healthcare givers amd it suddenly your life can become very flat without all the previous bustle. Support groups are good and if you access to a local Maggies centre then l can definitely reccommend visiting them,they made a big difference to me,

                                                                                                Hope your rehabilitation goes well and you enjoy a good recovery,

                                                 David.

Thank you , it's very reassuring! I shall have a little look