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Tamoxifen

beccie
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I have been on Tamoxifen for two years and have horrendous 0ain and cramps in my thighs and gained belly fat. I have had one problem after the other including type 2 diabetes and hypothyroidism. Before all this i was a healthy and very fit and active person, now I can't do a quarter of what i did before and even that is with pain and exhausts me. My care team keep telling me it nothing to do with Tamoxifen but its too big a coincidence that its all started since taking Tamoxifen. I feel like just stopping myself, during Covid I have found it so hard to really talk to anyone about it all. Has anyone else had these problems and stopped the Tamoxifen, did it improve things. 

Thanks for reading 

Parents
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    Hello

    I was not on Tamoxifen but Anastrozole and like you I was strong and healthy at time of diagnosis.   I had multiple, repeating, painful and compounding in intensity ill effects that were not recognised by my medical professionals.    It transpired that I had extra sensitivity to changes of brand.     After 2 years and 2 months I rang Breast Cancer Now - Someone Like Me, assessed my own situation  then decided to stop.    That was 7 years ago.  Have you spoken to Maggies?   Hope this may help.      X

    Hello Again

    May I suggest that you contact your Oncologist.  I have just remembered that my Oncologist was the missing link as my hospital was short of them in 2012  Don't let this go on too long.     All Good Wishes for 2022.   
     

     

Reply
  • Offline

    Hello

    I was not on Tamoxifen but Anastrozole and like you I was strong and healthy at time of diagnosis.   I had multiple, repeating, painful and compounding in intensity ill effects that were not recognised by my medical professionals.    It transpired that I had extra sensitivity to changes of brand.     After 2 years and 2 months I rang Breast Cancer Now - Someone Like Me, assessed my own situation  then decided to stop.    That was 7 years ago.  Have you spoken to Maggies?   Hope this may help.      X

    Hello Again

    May I suggest that you contact your Oncologist.  I have just remembered that my Oncologist was the missing link as my hospital was short of them in 2012  Don't let this go on too long.     All Good Wishes for 2022.   
     

     

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