Draining messages from family

First of all let me just say that I know how lucky I am to have friends and family who care however...

I’m over a year in with chemo every 2 weeks and all their texts still ask 

“how are you feeling”

”how are the side effects this time”

”how are you”

”just checking in”

Etc 

I’ve told them all before that I just want to be treated as I was before diagnosis. I’m not burying my head in the sand but also I’m sick of my life revolving around cancer. The constant asking how I am drives me mad.

The truth is I just want to forget about it, I’m having fun with my son then they text and it just slaps me in the face yet again.

im not even sure what I’m meant to reply? How is telling them that I feel sick or I’m constipated helping anyone? If anything was up, I needed help or ended up in hospital they would know about it.

It probably sounds really selfish but I don’t want some pity party and it’s bringing me down and also winding me up at the same time. 

 

 

 

 

Parents
  • Hi there,

     

    I was wondering if you could give me a bit of insight into your diagnosis if you do not mind me asking. I know this doesn't have much to do with your discussion however I have seen in previous that you went to a&e where they did tests etc. I too have had a similar situation to you, however I haven't been diagnosed with anything yet and all I am getting back from doctors and nurses (family included) is that it isn't anything 'sinister'. Without turning this into a novel I was in and out of a&e with pain in the abdomen, I had a ct scan done in a&e, along with bloods of liver and kidney function and two stool samples done. All has come back clear, however I am slightly concerned and worried that something would have been missed. Sorry I really am going on a bit here and I'm sure you have lots to deal with yourself. However, I was wondering what procedures you had done in a&e when you first went it. 
     

    Any feedback would be great. Thank you. 

  • Me again, 

    Also I am 25 years old, no that it means much, although doctors and nurses keep on bringing it up. I also saw a specialist on Friday and he said he wouldn't do a colonoscopy because I have had one done previously (3 years ago) and because of all the tests I have had done so far and nothing has raised suspicion.  

    Very frustrating!!! 

  • Hey,

    Sorry to hear you've been feeling unwell and not getting anywhere. Excuse me if I repeat anything you've already read...
    I went to A&E with severe abdominal pains, I'd been feeling sick which progressed to being physically sick for months. At hospital they took bloods my liver markers came back high. So they admitted me, they believed it was gallstones but when they did an ultrasound the following day it showed my liver was covered in tumours. The liver is not usually the primary site so then they gave me a CT scan which is where they found another tumour this time in the bowel. 
    This all went on within the space of about a week.

    The CT scans are pretty indepth and should pick up any tumours so that's a very good sign that yours have came back clear.

    I'm no Dr but I think the fact there's nothing on the scans is great news. That's not to say there isn't anything else wrong, it could be a wide range of things (when we were speculating what was wrong the symptoms could have been a sign of colitis, crones, IBD). I think Drs are very quick to believe just because people are young that they don't know when something is wrong.

     

Reply
  • Hey,

    Sorry to hear you've been feeling unwell and not getting anywhere. Excuse me if I repeat anything you've already read...
    I went to A&E with severe abdominal pains, I'd been feeling sick which progressed to being physically sick for months. At hospital they took bloods my liver markers came back high. So they admitted me, they believed it was gallstones but when they did an ultrasound the following day it showed my liver was covered in tumours. The liver is not usually the primary site so then they gave me a CT scan which is where they found another tumour this time in the bowel. 
    This all went on within the space of about a week.

    The CT scans are pretty indepth and should pick up any tumours so that's a very good sign that yours have came back clear.

    I'm no Dr but I think the fact there's nothing on the scans is great news. That's not to say there isn't anything else wrong, it could be a wide range of things (when we were speculating what was wrong the symptoms could have been a sign of colitis, crones, IBD). I think Drs are very quick to believe just because people are young that they don't know when something is wrong.

     

Children
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