Draining messages from family

First of all let me just say that I know how lucky I am to have friends and family who care however...

I’m over a year in with chemo every 2 weeks and all their texts still ask 

“how are you feeling”

”how are the side effects this time”

”how are you”

”just checking in”

Etc 

I’ve told them all before that I just want to be treated as I was before diagnosis. I’m not burying my head in the sand but also I’m sick of my life revolving around cancer. The constant asking how I am drives me mad.

The truth is I just want to forget about it, I’m having fun with my son then they text and it just slaps me in the face yet again.

im not even sure what I’m meant to reply? How is telling them that I feel sick or I’m constipated helping anyone? If anything was up, I needed help or ended up in hospital they would know about it.

It probably sounds really selfish but I don’t want some pity party and it’s bringing me down and also winding me up at the same time. 

 

 

 

 

  • Hi definitely up the wall, 

    Thats trouble friends and relatives don't know what to do but want to keep in touch and help not knowing there a hindrance,, we've all had it I'm afraid there's no easy way out, remember they mean well if you ask they'll be there like a shot, please just grin and bareit it does get easier they sometimes realise there not helping,, but you've got friends hue care sometimes friends vanish when cancer is around, your very lucky good luck with your future. 

    Billy 

  • Thanks Billy.

    I think I just needed a moan  

  • That's OK I've got Broad shoulders, but a week back you'd be surprised how many come on forum to have a good rant it helps to let off steam, your welcome any time. 

    Billy 

  • Your post has struck a chord with me, I'm totally not into the pity party thing either, I'm afraid those types of messages used to irritate the heck out of me, I'd get back from chemo day with messages pinging...looking back I now of course realise they were only showing concern but at the time? By crikey....I used to think...you have no blimmin idea!!! In the end hubby use to answer them...

    you cant beat a good moan....with people who do understand how your feeling and what your going through.......now...I'm going to sound a right diva now....the amount of flowers I received was humongous! I didn't have vases and they piled up in the sink, in the end I use to give them away, my living room looked like a funeral parlour,I used to think...now why can't you send me something useful? Google chemo and get ideas! But of course I never did....lol....now I do sound like a drama queen!!!

  • Oh don’t get me started on the flowers. My mums neighbour (who I’ve never met btw) sent me a pot plant and a book called “when god calls your name” right when I was diagnosed.

    Then I read flowers and plants weren’t great to be around when you’re having chemo so I threw it all out. (I was having a melt down day).

    im glad it’s not just me that feels this way.

    Yes! The chemo day messages are a particular annoyance. I’ve had 22 sessions now and never an incident but I get l the “thinking of you today” and “let me know when your home” texts still.

    i don’t quite know what they think happens there but the unit I go to is very pleasant and friendly, it’s not a sad place at all.

    Maybe we’re both divas xxx 

  • Yes! I got books too!!! One was about diet to prevent cancer, all I thought was...a bit ruddy late for that love! 

    My heart used to sink when the florist walked up my path, here we again....I had to scrabble around for me wig or turbans before I could answer the door, and then have  to store them somewhere as I only have 2 vases, then have all the bits to clear up...

     

    lol....yes, it's official then....upthewall and Marlyn are both divas.....and we don't actually care that we are...xxx

  • I can totally relate to this.  It usually had no desire to discuss my treatment or feelings with anyone else but my partner.  I only told people so that it would not be a secret - and because I was going to have to explain the hair loss.  I wanted people's understanding, but not their sympathy and words of encouragement.  Sometimes I'd discuss it but it had to be on my terms. Its quite personal after all.  And being on treatment doesnt make you any less busy that you can keep answering text messages does it?  Whats more we cannot 'kick cancer in the ***' by being positive!  Only the chemo and the doctors can do that.  

    Thats my rant over.

  • Hi there,

     

    I was wondering if you could give me a bit of insight into your diagnosis if you do not mind me asking. I know this doesn't have much to do with your discussion however I have seen in previous that you went to a&e where they did tests etc. I too have had a similar situation to you, however I haven't been diagnosed with anything yet and all I am getting back from doctors and nurses (family included) is that it isn't anything 'sinister'. Without turning this into a novel I was in and out of a&e with pain in the abdomen, I had a ct scan done in a&e, along with bloods of liver and kidney function and two stool samples done. All has come back clear, however I am slightly concerned and worried that something would have been missed. Sorry I really am going on a bit here and I'm sure you have lots to deal with yourself. However, I was wondering what procedures you had done in a&e when you first went it. 
     

    Any feedback would be great. Thank you. 

  • Me again, 

    Also I am 25 years old, no that it means much, although doctors and nurses keep on bringing it up. I also saw a specialist on Friday and he said he wouldn't do a colonoscopy because I have had one done previously (3 years ago) and because of all the tests I have had done so far and nothing has raised suspicion.  

    Very frustrating!!! 

  • I find the how are you texts annoying (my dad is dying, how do you think i am). The point you made about the msgs just popping up when I'm having an ok time really resonates. That being said i do get annoyed when people don't seem interested. Thinking of you texts are fine as long as no response is required