Lack of support

Hi All,

This is my first post on this group, so bear with me :-) 

My fiance was diagnosed with Terminal Cancer last December and was only given a year to live. He has now finised pallative chemotherapy and we have an appointment with the consultant tomorrow to understand what happens next.

He has lost a lot of weight due to the chemo as he has lost his appetitite and has had a lot of sickness over the past 4 months. Obviously this has been devastating news and our lives have been torn apart but what I have really struggled with is the general lack of support and someone to turn to, to ask questions etc. Maybe I should have joined this forum a while ago, but have had to put all my strength into him. I have to work as I still need to pay the mortgage and bills, but i am drowning in guilt because I leave him at home everyday.. Macmillan have provided no support whatsoever and my local hospice only deal with referrals from the hospital. I suppose my question is, is there anyone else out there that we can turn to, to provide emotional and pratical help?

Thanks in advance 

Parents
  • I'm so sorry to hear your situation macca, I can totally understand hence I posted today. We've not had any referrals yet but I did drop into the local Maggie centre near us. They listened which I think at the moment is all I need, someone to talk to about how I'm feeling as I can't burden my husband. I'm sure reading some posts on this site will give you the strength you need to help you get through this. Take care of yourself as that's what I keep getting told. X

  • Hi

    sorry to hear of your situation. Financially there is little support out there apart from claiming relevant benefits. Is you husband in a pension scheme? People who have or had cancer can access their pension early. What is the GP doing to support your situation, there should be a care plan in place.

Reply
  • Hi

    sorry to hear of your situation. Financially there is little support out there apart from claiming relevant benefits. Is you husband in a pension scheme? People who have or had cancer can access their pension early. What is the GP doing to support your situation, there should be a care plan in place.

Children
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