Knotted/matted hair

Hi, I’ve had my 2nd cycle of FEC T chemo for breast cancer. I have been using the cold cap to try to minimise my hair loss. The problem I’m having at the moment is my hair texture has completely changed and I have a massive knot in my hair. It’s not like a normal knot. Apparently this is something that can happen with chemo. Does anyone have any tips how to get this knot out? I’ve been trying for 2 days (around 8 hours)using coconut oil. Washing  my hair made it worse. X

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  • Hi all.about.eve, 

    I'm so sorry to read about the troubles you're having with getting the knot out of your hair due to the texture of your hair changing since starting the cold cap.

    Our cancer nurses are just a phone call away if you'd like to chat to them about this. You can call them for free on 0808 800 4040, Monday - Friday between 9a.m - 5p.m but it may be worth getting in touch with your medical team as they should be able to give you some advice about this as well.

    I hope you're able to remove the knot soon Eve and that you're able to find easier and more manageable ways to look after your hair during chemo.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi Steph,

    thanks for the reply. I ended up going to the hairdressers and saw 2 very helpful ladies and I ended up having my hair cut as it couldn’t be saved.  I’m now coming to terms with wearing a wig. Xxxx

  • I'm glad the two ladies at the hairdressers were really helpful although I'm sorry that your hair couldn't be saved on this occasion.

    It can take a little while to adjust to wearing a wig as quite a few members on the forum, including the lovely [@Dizzle82]‍, have found out and hopefully some of them will be along soon to offer their support and advice. We have some information and advice about hair loss and wigs on our website just here if you'd like to have a look as well.

    All the best Eve, 

    Steph, Cancer Chat Moderator

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  • I'm glad the two ladies at the hairdressers were really helpful although I'm sorry that your hair couldn't be saved on this occasion.

    It can take a little while to adjust to wearing a wig as quite a few members on the forum, including the lovely [@Dizzle82]‍, have found out and hopefully some of them will be along soon to offer their support and advice. We have some information and advice about hair loss and wigs on our website just here if you'd like to have a look as well.

    All the best Eve, 

    Steph, Cancer Chat Moderator

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