Today the hospice nurse visited!

It was with mixed emotions that I saw the hospice nurse today.  

As I live alone I have decided that I will end my daysin the local hospice and the wonderful nurse was so helpful.  She will be coming back next week and has given me homework - put my affairs in order by the time she comes again.  She is organising prescriptions for all the things I now have to buy myself, a wrist alarm in case I need help, visits to complementary therapies at the hospice and attendace allowance.  She said I can go to their daily get togethers where they do art classes etc with lunch.  She put my mind at rest with the pain relief saying that if it gets too bad they will take me in for a week and sort me out.

I just have to say how relieved I am, and can now stop crying wondering what was going to happen to me.

Parents
  • What an emotional post -  although I have secondary breast cancer, I am not as far down the road as you yet.   It must have really difficult to have this visit today and you are amazing in how you have handled it.  It's good to know that you will have such great people looking after you and you have some fun activities arranged.  I am thinking of you and sending you lots of love xxxxx

Reply
  • What an emotional post -  although I have secondary breast cancer, I am not as far down the road as you yet.   It must have really difficult to have this visit today and you are amazing in how you have handled it.  It's good to know that you will have such great people looking after you and you have some fun activities arranged.  I am thinking of you and sending you lots of love xxxxx

Children
  • Hi Pauline .... I am so pleased to hear that you are now in the 'helping hands' of the hospice team.  Sadly we do not have a hospice in our area and it must be a comfort to meet those people who will help you and your family, and be able to support you with your pain relief etc.  Also to forge new friendships with others in a similar situation to yourself.

    Due to the lack of facilities in our area, I am under the care of the local palliative care team who hopefully will manage my care at home if appropriate.  It has been a Godsend to have their help with pain relief, financial information, etc.   I am sure you will also appreciate the fact that you have people you can now turn to - it has been a long time coming for you!

    Pauline, there are several of us here in the same boat and I hope we can continue to support each other when needed.  All the best to you my forum friend x

  • Hi Pauline,

    Glad you are now getting the care that you deserve, the hospice movement and their incredible staff seem to all provide a service that no hospital  can match. As you say the holistic approach taking care of not only the medical but the spiritual, financial and practical side allows you  to approach the future without as much concern. 

    Gills biggest worry was the pain, but I can say that at no stage did  she ever suffer more than moderate discomfort. Initially her  pain was controlled  by palliative care nurse and GP with the help of the wonderful community nurses, but as soon as sign of anything worse a few days in the hospice and it was sorted.

    I hope you continue to get good support now you are in contact with your hospice, you deserve it. No one should have to face this awful thing alone and in fear.

    Keep strong and love and best wishes 

    Deggsy