managing chemo

Hi chrissylemon here! Have just had my 2nd round of chemo and am managing the side effects just!!!! My main one is insomnia have been awake since 339am! Have got diazepam which does help but don't want to get hooked on them! I finish the steroids tomorrow which should help but i still had difficulty last time throughout the three wks? Any suggestions? And did anyone find the taxotere worse than the fec? Xx

  • Hi sorry i do have an injection but only the once on the 2nd day! Think i am anaemic as v tired and shaky! My partner has been out and bought liver and broccoli to boost my iron level! Just hope feel better soon coz can't feel like this for wks! Still we must remain positive for the sake of ourselves and families! But its sooooo hard at times xx

  • hi. Im rose. read your blog. its like me. live on my own. have 3 days of chemo every 3 weeks. its terrible. iinjections on day 5-13. am ill for about 14 days   the sickness pills work, but give chest pains instead. what has work for me is the doctor gave me dihydrocodeine for the pain. so frst thng in the morning I have them 1 hour before injections and steroids and sicknesspills.I take it with a glass of pure orange. this help with side  affects. as soon as I can I stop taking the sick tabs. if i feel abit sick. I drink a can of coke that help. every think taste horrible. so eat crisps, soup.  melon.   at night have the dihydrocodeine with orange juice it helps sleep. they say to drink lots of water , but find that pills stop you  going to lav. so drink orange juice instead so glad you have a support group. I have no one. I try to keep cheerful. as ITS hopeful not for ever  bye for now       rose

  • Hello Rose. My appetite also goes during chemotherapy, I find it hard to find anything I feel like eating. How many chemotherapy sessions have you left. I have two more then radiotherapy. The support group is once a month, I find it useful to chat to others in similar situations. I also speak to a Macmillan nurse every week, the hospital put me in touch with them when I had no one to talk to. I wish you well and hope the side effects lessen. Take care Audrey x

  • Hi Chrissylemon I hope you had a better sleep last night. Liver and onions was a favourite of mine, haven't had for ages. Hope you are having a relaxing weekend x

  • Yes thank u it was lovely! Had a better nites sleep but woke early and watched murder she wrote in the spare room so as not to disturb my other half! Got district nurse coming tomoz to flush my picc line so will ask her for advice! Might even try a little glass of wine! Take care x

  • hi audrey.   I have 3 chemos to go. then 5 rads.   I cant eat . the food taste horrible. so eat crisps, soup. just little bits. I love a cup of tea. but cant have that as it taste of sour milk. dont have nurses to talk. but have good mate.  rings me every day. and call on saturdays for chat. any way chin up. soon be over. rose

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    Hi   chrissy

     

    was like you couldn't sleep while on steriod, only slept  for four hours a night use to go on my eye pad do house work ironing etc because once the steriods stopped I should to start to get ill with flu like symptoms strange taste in mouth diarrhoea thrust both ends,sore like ulcers down below near bottom feel very down pains in legs and knees. Have chemo taxotere on the Thursday would get ill on Saturday or Sunday

    until Wednesday started to slowly get better Thursday 

     

     

  • Hi Chrissy and Puds. Sounds like we are about the same stage of our treatments. I am eight days after number four, I have started with joint pains and terrible diarrhoea which has kept me awake for two nights. I am back at the oncology day unit today to get my line flushed. Hope you both are having a good day and the side effects not too bad. Best wishes to you both. Audrey x

  • Hi Rose. I am the same with eating, it's awful when food has no taste, like you I used to really enjoy a cup of tea now I hardly drink a few sips. I am pleased your friend rings you   It's nice to off load and sometimes just talk over normal stuff. I find it's the normal life I now crave. As you say it will be over soon and we can get on with our lives again. Take care. Audrey x

  • I have finished my treatment yippee can't say I will miss it , slowly getting back to my self leg were very painful with last treatment a bit of nerve damage. But slowly improving hope all goes well for you xxxpuds