Hi it's Audrey here. I had no 4 on FEC-T. I had to double the steroids up the day before. I have had two sleepless nights, really tired but my mind seemed active. I asked the nurse and she said the steroids could have caused this. Last day today, I have not had any side effects as yet, still early days. I had terrible nausea despite anti sickness drugs for about 10 days on FEC. Hope you manage a full nights sleep tonight x

Hi! Was awake again at 430! Third time on the row! But better than 239 on the tuesday night! Doc has given me diazepam to help to relax! V tired all the time which is frustrating when u have jobs to do and i just want to lie down and watch tv! But it will get easier each day i hope! Thank u for replying it really helps to chat to other people! Xx

Hi Chrissylemon. I know it's awful waking up so early especially when you feel so tired. I am putting my sleepless nights down to the steroids. The first three treatments made me so tired, most nights in bed for nine and sleeping until about ten next day. It is day three after last session so started the injections today. Do you take them daily for seven days too? I go to a support group in our local hospital, it's called Maggies, think it's a national charity. I enjoy chatting informally to others going through same at different stages. There seems to be many variants of treatment. Hope you have a restful day and catch up on some of your lost sleep. Take care x

Hi there! Yes am finding it hard to sleep and have been awake since 4am! I am not on any injections what are they for? The other problem is constipation which is so painful! Am drinking lots of water and taking dulcoease which is starting to work a little! Feel v low and it seems such a long way till this nightmare will end! My partner has been great but am sure he must be fed up at times! Sorry to rant on but not in a good place at the moment! I know from the last time i will feel better soon! So i need to shake myself down and be positive again! Take care xxx

Hi there. The injections are to stimulate white blood cells I believe. I administer them myself, really easy to do. I understand how you feel I had terrible constipation and stomach pains until the laxatives started to work. The low days are awful too, I live on my own and at times feel isolated, the positive side of that is I don't have to put an act on and pick myself up when the dark days pass. Knowing that in a few days we will feel better helps, but it's still hard to get through each day feeling tired and unwell. I hope you feel better soon and get positive again very soon. Try and catch up on sleep when you can as I find the tiredness brings your mood down too. Take care and best wishes x

Hi sorry i do have an injection but only the once on the 2nd day! Think i am anaemic as v tired and shaky! My partner has been out and bought liver and broccoli to boost my iron level! Just hope feel better soon coz can't feel like this for wks! Still we must remain positive for the sake of ourselves and families! But its sooooo hard at times xx

hi. Im rose. read your blog. its like me. live on my own. have 3 days of chemo every 3 weeks. its terrible. iinjections on day 5-13. am ill for about 14 days   the sickness pills work, but give chest pains instead. what has work for me is the doctor gave me dihydrocodeine for the pain. so frst thng in the morning I have them 1 hour before injections and steroids and sicknesspills.I take it with a glass of pure orange. this help with side  affects. as soon as I can I stop taking the sick tabs. if i feel abit sick. I drink a can of coke that help. every think taste horrible. so eat crisps, soup.  melon.   at night have the dihydrocodeine with orange juice it helps sleep. they say to drink lots of water , but find that pills stop you  going to lav. so drink orange juice instead so glad you have a support group. I have no one. I try to keep cheerful. as ITS hopeful not for ever  bye for now       rose

Hello Rose. My appetite also goes during chemotherapy, I find it hard to find anything I feel like eating. How many chemotherapy sessions have you left. I have two more then radiotherapy. The support group is once a month, I find it useful to chat to others in similar situations. I also speak to a Macmillan nurse every week, the hospital put me in touch with them when I had no one to talk to. I wish you well and hope the side effects lessen. Take care Audrey x

Hi Chrissylemon I hope you had a better sleep last night. Liver and onions was a favourite of mine, haven't had for ages. Hope you are having a relaxing weekend x

Yes thank u it was lovely! Had a better nites sleep but woke early and watched murder she wrote in the spare room so as not to disturb my other half! Got district nurse coming tomoz to flush my picc line so will ask her for advice! Might even try a little glass of wine! Take care x

hi audrey.   I have 3 chemos to go. then 5 rads.   I cant eat . the food taste horrible. so eat crisps, soup. just little bits. I love a cup of tea. but cant have that as it taste of sour milk. dont have nurses to talk. but have good mate.  rings me every day. and call on saturdays for chat. any way chin up. soon be over. rose

Hi Rose. I am the same with eating, it's awful when food has no taste, like you I used to really enjoy a cup of tea now I hardly drink a few sips. I am pleased your friend rings you   It's nice to off load and sometimes just talk over normal stuff. I find it's the normal life I now crave. As you say it will be over soon and we can get on with our lives again. Take care. Audrey x

Hi Rose. I am the same with eating, it's awful when food has no taste, like you I used to really enjoy a cup of tea now I hardly drink a few sips. I am pleased your friend rings you   It's nice to off load and sometimes just talk over normal stuff. I find it's the normal life I now crave. As you say it will be over soon and we can get on with our lives again. Take care. Audrey x