Mother about to be diagnosed with Lung Cancer

Hello,

My mother is 82, gave up smoking 29 years ago and has had a bronchoscopy for suspected lung cancer. She had over 2 l fluid on her lung which has been drained and a ct scan has shown a 5.1cm lesion that has spread to 2 lymph nodes and because of this and the fluid (pleural effusion)  they are classing it as stage 4.

Once results are in there will be another mdt meeting and she is going to see Consultant (with me) on Jan 8th,it would be sooner but obviously Xmas and New Year are slowing things up. Now my mum didnt understand the terminology in her discharge note and she is in denial and tbh Im not prepared to burst her bubble.

I presume her only course of treament will be palliative care...I have had bone cancer mself so unfortunately have a bit of  an idea of his evil disease alhough I was very lucky and am in remission.

I will be her sole carer as my brother died 9 years ago and I want to be as aware of the situation and of things that will happen to her as possible.When we go for her Consultants meeting does anyone know how they will advise her that it is incurable...will they give her a full prognosis and possibly a time scale? I want to be as geared up as possible for her so I can be as helpful to her as I possibly can.I would love to think they are wrong because I adore my mum and although she is 82 Im not ready to lose her and never thought she would get lung cancer because she had stopped smoking so long ago.

The lung cancer nurses are being wonderful and calling her most days, the card they gave her says chest nurses but looking up the hospital I saw that they are lung cancer nurses so that sort of dashed any bit of hope I had.

Sorry to ramble on but thanks so much for reading..consultant thinks its T4N2M1A.

Thanks again,

Jacci

  • Hi jacci, I hope your ok will be keeping my fingers crossed for the test results xx

  • Hi Jules and Hope, would you believe test was cancelled yesterday but will be done today, I can only assume there has been no urgency because of Mums age and likely prognosis. Couldnt see her last night as she rang me too late for me to get to hospital....this one is about 3 hours away but will get there tonight. I slept very well last night though and feel much more like me today because of it. Still not a happy Jacci but a bit better IYKWIM.I am feeling very angry with life today but I suppose that is normal.

    Take care,

    Jacci x

  • Hi Jacci

    I would be annoyed too if myMum was being messed around.  Apart from anything else you expect things to happen when  you are told and plan arrangements around that info!  Its not as if visiting is just round the corner for you. Hopefully she will be sorted out today (do wonder if sometimes they just cannot get the transportation between hospitals arranged but its no excuse when Mum'sis expecting to be looked after quite rightly so).

    Pleased that you managed to catch up on much needed sleep and you are so right that it makes a difference in how you can cope. Will keep fingers crossed that the next news you get will be more promising.  Take care. Jules xx

  • Well Mum had the test done on Wednesday so results will be about 10/14 days and she has now been transferred back to her local hospital. She is in so much pain and keeps being sick and bless her had an enema today too..she told me tonight she would rather die now than be in this pain..honestly and I dont mean this to sound selfish or heartless, if the hospital rang me now to say she had had a fatal heart attack I would feel relief for my poor Mum. This is tearing her apart..I didnt think people had to be in pain these days...she has been like this now for well over a week, its cruel. I cant believe all this time has gone on and we still dont know what we are looking at, although we do have a fairly good idea....anyway I will stop rambling now and try to go to sleep.

    Night all,take care,

    jacci xx

  • Thinking and praying for you all x

  • Hi again Jacci

    Have responded on your other thread but will hope you have a peaceful weekend.  I agree that in this day and age no one should be having to endure such pain and suffering and its very hard to be a 'watcher'.  Thinking of you all.Jules xx

  • Hi jacci

    I'm so sorry to hear what your mum is still going

    Through and how much pain she is in.

    I hope they manage to find some way to make your

    Mum more comfortable.

    Hugs Hun and please keep us updated.

  • Hello, well today is another day, I took a travel sickness tablet last night to help me sleep which worked, almost too well as I am still in bed! How are you doing Sunshine and Jules I hope you and Hubby have a good weekend together.

    Regarding Mum its the weekend now obviously so nothing new will be happening. She is type 1 diabetic (has 4 injections per day) and seems almost manic now regarding her sugar levels and is moaning non stop that the nurses on the ward know nothing about diabetes and that she has to manage her condition on her own in the state she is in with no help from them. Bless her she is not an easy patient! The morphine has affected her mood, such a shame it doesnt seem to be affecting the pain.I have always tried to live in the moment but cant stop myself thinking of the future, Im now thinking when we do get results she wont understand what they are talking about, she seems to be getting more deaf as well and if she is still in agony wont be able to sit still during her appointment but then I try and tell myself that she is certainly not the only person that has been in her position. Problem being this is the first time that she and I are going through all this. My journey was so different, my Consultant thought my tumour was benign until it was removed and when I got my diagnosis the tumour had gone and no further treatment was required so all totally different.

    Hark at me rambling on again, take care ,

    Jacci xx

  • Hi all, well yesterday was a better day, Mum said her pain wasnt as sharp as it has been, she is still vomiting on and off all day but she did look a little bit more like my mum yesterday. They did an xray yesterday, she thinks it was on her chest so results for that on Monday and I think they have changed her pain meds so will see if they help the pain and also make her not so sick,

    Thank you all so much for your support, it helps so much.I have decided I need to put some normality back into my life if I can so had my nails done yesterday...baby steps....

    Love to you all,

    Jacci xx

  • Morning Jacci

    It was good reading that your Mum shows signs of improvement and maybe the pain meds are doing a bit more good now.  Keeping fingers crossed for more good times for you and thefamily too.  Iamjust awaiting arrival of daughter and family so the peace will be replaced by good kiddies laughter and no doubt lots of games of snakes and ladders!! I have four new jigsaws to do with our eldest grandson (5) all 100 pieces.  We got him one for Christmas thinking it would take a bit of time for him to achieve only to hear from his Mum that once she did the 'edges' he finished it off within the hour!!

    Bet you really enjoyed having your nails pampered (was thinking of having this done before our weekend away but need to get the nails growing first).  Wishing you a peaceful day.  Virtual hugs. Jules x