Mother about to be diagnosed with Lung Cancer

Hello,

My mother is 82, gave up smoking 29 years ago and has had a bronchoscopy for suspected lung cancer. She had over 2 l fluid on her lung which has been drained and a ct scan has shown a 5.1cm lesion that has spread to 2 lymph nodes and because of this and the fluid (pleural effusion)  they are classing it as stage 4.

Once results are in there will be another mdt meeting and she is going to see Consultant (with me) on Jan 8th,it would be sooner but obviously Xmas and New Year are slowing things up. Now my mum didnt understand the terminology in her discharge note and she is in denial and tbh Im not prepared to burst her bubble.

I presume her only course of treament will be palliative care...I have had bone cancer mself so unfortunately have a bit of  an idea of his evil disease alhough I was very lucky and am in remission.

I will be her sole carer as my brother died 9 years ago and I want to be as aware of the situation and of things that will happen to her as possible.When we go for her Consultants meeting does anyone know how they will advise her that it is incurable...will they give her a full prognosis and possibly a time scale? I want to be as geared up as possible for her so I can be as helpful to her as I possibly can.I would love to think they are wrong because I adore my mum and although she is 82 Im not ready to lose her and never thought she would get lung cancer because she had stopped smoking so long ago.

The lung cancer nurses are being wonderful and calling her most days, the card they gave her says chest nurses but looking up the hospital I saw that they are lung cancer nurses so that sort of dashed any bit of hope I had.

Sorry to ramble on but thanks so much for reading..consultant thinks its T4N2M1A.

Thanks again,

Jacci

Parents
  • Just come off the phone to Ma and she has said she needs to go into a nursing home as she cannot walk 2 steps without being out of breath and is being sick very often, carer has been but still waiting for district nurse.I have told her to tell nurses how bad she is and hopefully they can start the ball rolling on that. The idea is for her to go into a nursing home nearer to me, tbh I would rather she went straight into a hospice as I know the care there would be second to none but obviously they feel she isnt ready for that yet.

    Mum was less confused but of course I had to start crying down the phone didnt I and she had to comfort me......a lot of support I am.

    Take care all,

    Jacci xx

  • Oh Jacci, just had to talk to my daughter and then have read your update.  Its lovely that your Mum is able to comfort you (she will still feel useful!!) and its does no good to hide your true feelings - Mums as you know have intuition on how you are any way!!  It will be a weight of both your minds if she is able to be 'cared for' 24/7 and it would be a lot more help for you if she is local (thats what my Mum's social worker arranged when Mum was moved into residential care but now my local council feel she could be cared for 'in the community' hence why they refuse to help with funding but thats another story!!).  The moderator has come up with great idea about calling the nurses and despite your emotions you sound very effecient in handling things - go with your gut feeling and get all the support you need.  Jules xx

  • Thanks Jules and Ann, feel slightly better now, rang District nurses as they havent come today, the nurse that came on Friday got it wrong, they are coming tomorrow....not impressed.Rang hospice and they are going to go and see Mum tomorrow, I have made the deliberate decision not to be there as I think if Mum is on her own they can really see how she is....very impressed with the hospice staff.

    Oh well, lets see what happens tomorrow, Jules my mum has also lost a leg, she lost it when she was 10 so that isnt making life easier for her and she is a diabetic too on 4 injections a day.She is managing to inject herself at the moment but she has been diabetic for over 50 years so that is fairly well ingrained in her memory.She is worried about taking the oxynorm on the higher dose that she was advised to do as she realises it affects her badly so has gone back down to the smaller dose.

    Take care,

    Jacci xx

  • Hi Jacci

    Thats good news re hospice staff visiting your Mum - they are such a wonderful source of support and think you know best what is right for your Mum'sneeds.  Sounds like she knows what she needs too which will be a great help as she can voice her own opinions when they visit and perhaps they will be able to liaise with the district nurse.  Am sure having a couple of days  break  will enable you to recharge too.  Jules xx

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  • Hi Jacci

    Thats good news re hospice staff visiting your Mum - they are such a wonderful source of support and think you know best what is right for your Mum'sneeds.  Sounds like she knows what she needs too which will be a great help as she can voice her own opinions when they visit and perhaps they will be able to liaise with the district nurse.  Am sure having a couple of days  break  will enable you to recharge too.  Jules xx

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