Mother about to be diagnosed with Lung Cancer

Hello,

My mother is 82, gave up smoking 29 years ago and has had a bronchoscopy for suspected lung cancer. She had over 2 l fluid on her lung which has been drained and a ct scan has shown a 5.1cm lesion that has spread to 2 lymph nodes and because of this and the fluid (pleural effusion)  they are classing it as stage 4.

Once results are in there will be another mdt meeting and she is going to see Consultant (with me) on Jan 8th,it would be sooner but obviously Xmas and New Year are slowing things up. Now my mum didnt understand the terminology in her discharge note and she is in denial and tbh Im not prepared to burst her bubble.

I presume her only course of treament will be palliative care...I have had bone cancer mself so unfortunately have a bit of  an idea of his evil disease alhough I was very lucky and am in remission.

I will be her sole carer as my brother died 9 years ago and I want to be as aware of the situation and of things that will happen to her as possible.When we go for her Consultants meeting does anyone know how they will advise her that it is incurable...will they give her a full prognosis and possibly a time scale? I want to be as geared up as possible for her so I can be as helpful to her as I possibly can.I would love to think they are wrong because I adore my mum and although she is 82 Im not ready to lose her and never thought she would get lung cancer because she had stopped smoking so long ago.

The lung cancer nurses are being wonderful and calling her most days, the card they gave her says chest nurses but looking up the hospital I saw that they are lung cancer nurses so that sort of dashed any bit of hope I had.

Sorry to ramble on but thanks so much for reading..consultant thinks its T4N2M1A.

Thanks again,

Jacci

  • Hi Jacci,

    So pleased to hear your mother was a little better last night. I know all too well how hard it is for us but it is also hard for them regarding their loss of independence. My mother was a lady who like most mothers had always been fit and active so when over a period of time she had to give her gardening which she loved so much, and then as the cancer progressed she wasn't able to walk so had to rely on others to help her dress etc, it became so hard for her. She accepted it but I know she hated it. Your mother shows a great fighting spirit by saying she can beat this cancer for another couple of years. It make one wonder where they find the reserve of energy at times.

    Take care Jacci, sending you and your mother best wishes, Brian

  • Well I have booked 3 days off work as Im so tired I just need a few days to recharge, will obviously still be visiting Ma and helping get things sorted for her coming home but with not working that will be one less thing to think about.

    Take care all,

    Jacci xx

  • Hi Jacci

    Just so pleased  you were able in one way or the other to pacify Mum about the whys and wherefors of care at home by those who are specially trained for it.  The plus side to this too will be that when you are able to visit you will not be too tired and she will enjoy your special times together.  Enjoy your few days off to recuperate (perhaps give yourself a little treat too as you really do deserve some TLC for all you are going through).  Hope your Mum's spirit carries you both through the coming weeks.  Take care  Jules xx

  • Hi Jacci,

    Sounds like  you are doing really well in the way you have explained things to your Mum, it is also good that she remains positive as I'm sure that helps.  It must be so difficult accepting that you need care with everything, but little by little I know your Mum will accept the care she needs from the carers.  I really hope social services provide you with good care and I hope your few days offer will give you time to recharge your batteries.  Take care.  Hope x

  • I know what you feel my brother was aso suffering from Lung Cancer and it makes me weak to see him sufferring fro series of chemotherapy. He is now admitted at Basavatarakam Indo American Cancer Hospital & Research Institute in India. I don't know what happen to him he is not even smoking but he acquire Lung Cancer. I am really hoping for his fast recovery. Really Cancer is a Traitor illness!

  • Hello Monica, yes cancer is evil and random, it just seems to strike wherever it wants. Im so sorry to hear about your brother, please come and have a chat on here as I have found it really helps.this situation we are in is far from easy.

    Well Mum is so so much better! She looks normal, is acting normal, the chesty cough has gone and she cannot wait to come home! Honestly to look at her now you wouldnt know she was ill!! The meds obviously affected her big time. I just hope that she can stay at this stage for some time, she is so positive now as well, bless her she is a very strong woman which is why when she was so weak last week it was such a worry..I think she will be home tomorrow or Thursday and I have decided after a chat with hubby I will stay one night in the week and one night at the weekend and obviously play it by ear.

    I am still in my bed.....Booking these few days off was one of my better ideas!!

    Well take care everyone and thanks again so much for your support.

    Jacci xxx

  • Hi  Jacci

    Glad you are able to manage that much needed lie-in/rest.  It must help enormously to have seen your Mum in better spirits and do hope she can maintain this and get home this week.  If nothing else she will probably be far happier in her own bed.  Also sounds like you have a good plan for your visiting time and am sure she will really appreciate it.  Its all a case of taking things as they come and coping the best we can given the circumstances and the forum helps us all along the road we are travelling.  Sending kind thoughts and hugs for a peaceful week.  Jules xx

  • Well Mum is hopefully going home on Thursday, I really hope so. She had a bit of pain yesterday, they gave her a small dose of oxynorm and it did work, hopefully the small dose wont give her the awful side effects.She is now her normal self mentally and is talking very matter of fact about the cancer, she had a couple of friends in yesterday and they asked her how she was and she just said I had fluid on my lung, then it collapsed and Drs say I have cancer.

    She is hoping for a miracle  which is fine as it keeps her going, she is a very strong individual and wont give up without a fight bless her.

    I have a very dear old friend coming round today for lunch which will be fab and then off to Mum tonight. It is much easier dealing with this when I dont have to go to work I must admit, this break has done me the world of good.

    Well take care all,

    Jacci xx

  • Hi Jacci

    Good to read your update and to hear that your Mum may soon be home.  She sounds as though she is regaining her strength (mentally and physically) and hopefully her medications can keep her comfortable as this makes life a little easier to deal with.

    Hope you have a lovely lunch with your friend and the break definitely helps regain your own cope-ability (think I made up this word).  Wishing you and the family all the best both now and for when  Mum returns home.  Virtual hugs and peaceful thoughts sent your way.  Jules xx

  • Hi jacci

    I'm sorry I've not kept up with whats been going on

    With you and your mum.

    It's really good news that's she might be home Thursday

    I will have my fingers and toes crossed all goes well

    And the medication she is on now keeps your mum

    Comfortable as possible, much love to you, your mum,

    And family xxxx