Hi, well that was a very strange visit tonight, she is so high on meds she didnt really know where she was, she kept thinking she was in a shopping centre and thought she had been to a park this morning. I had a look at her med charts and they have put a note on to say she is extremely sensitive to opiods,they were giving her hallucinations, and they have crossed the oxymorph off the list and I think have changed it to oxynorm. She has low sodium levels so drs have restricted the amount of fluids she is able to have. To be honest at least she was happy tonight and she did have some lucid moments where she asked me if I thought she was getting dementia and I reassured her it was just the meds.

One thing I noticed was she has had a blood test today and also has a cannula in her other arm with 3/4 ports and they have started her on Nystatin liquid 4 times a day to wash her mouth out with, this makes me think they are going to do palliative chemo but I will obviously find that out tomorrow.Also she said she saw the Dr today and a palliative care nurse or a nurse beginning with P as she said and they said she would be able to go home after the weekend , well we shall see. They have put her in an adult nappy thing which she wasnt very happy with but it was nice to see her smile, drugged up or not.

Well I will see what the Consultant has to say tomorrow, she doesnt know about the meeting so I didnt say anything to her.As much as Im dreading it it will be very helpful to know all the info they can give me.

Take care and thank you so much for your support it is helping me so much.

Jacci xx

Hi Jacci,

Sounds like the meds are causing your Mum's confusion, but you know so long as she's not in pain perhaps it is quite nice that she thinks she's been shopping and to a park - better than realising you're in hospital. My Mum was prescribed Nystatin liquid when she was in hospital because she got thrush in her mouth, not quite sure why, probably just lower immune system; anyway she had Nystatin for a week and it got better.  Good luck at the meeting today, I hope you are able to get answers to your questions.  I'm so glad I have been of some help to you; the people on this site helped me so much during some of my darkest days, and continue to help me as I do still have them sometimes, so if I can help someone through their dark times it is a good thing.  Take care and let me know how it goes.  Hope x

Well today is the day I find out what is going on with my Ma, I feel the worst I have felt during this journey, if I let myself I could sit and sob but that wont get me anywhere today will it.I dont know if Dr is going to see me and Mum together as Mum mentioned nothing about the meeting yesterday and if she is as confused as she was yesterday she wouldnt be able to take it all in anyway. I am meeting Dr on the ward so I will hide from Ma I think until I see him and then find out if we are having the meeting together. Its all so confusing but at least by the end of today I will know all I have to and will be able to help and support Mum through this next part of the journey, whatever that entails.

Take care all,

jacci xx

Hi Jacci

Will be thinking of you as you attend the consultation with your Mum's doctor today and am sure you are very apprehensive which is only human.  I know what its like to hold back tears but when you have time for yourself (easier said than done) let it happen and it does bring with it a certain amount of release. virtual hugs Jules xx

Hi Jacci,

I don't remember if we have spoken before or not but I have been reading your story on a regular basis. I do understand for I know all to well from my own experience how painful it is watching someone we love suffering from this evil disease. I felt so inadequate when watching my mother who had breast cancer. It was eight years ago yesterday that I lost her.

I will think of you today and hope that you get all the information you want. Take care, best wishes, Brian.

Hi Jacci,

Have been thinking about you today and wondering how your meeting went?  I hope you are OK.  Hope x

Meeting went as well as can be expected in the circumstances, Consultant did his job well.Mum has got poorly differentiated adenocarcinoma stage 4 , very advanced.Mums first question was will it kill me and the Dr said you will die with this Mary but not necessarily from this which I thought was quite a nice way of putting it.Mum doesnt know prognosis but I have been advised weeks or if she is lucky months. I will post more tomorrow but am truly shattered tonight, Ive literally just got back from hospital.

Thank you all again my virtual friends and hello Brian.

Take care all.

Jacci xx

Hi jacci

I've been thinking of you and your dear mum today

I'm truely sorry to hear your mum had stage 4 lung

Cancer, this must be truely differcult for you to take

In right not and I'm sure your exhausted.

Please take time to look after yourself, and keep us

Posted when you can, much love to you both xxxx

Hi Jacci

Hope you managed some 'recovery' sleep after such an emotional day.  Though not nice news to be given it was good to read that your Mum has a doctor with a good bedside manner.  Your forum buddies are hear to listen whenever you feel able to post.  In the meantime sending virtual hugs and peaceful thoughts as you continue the journey as a family.  Jules xx