macmillan nurses, here is my brief experience

I have often read macmillan nurses are wonderful but mine makes me feel a nuisance and I have only spoken to her twice in 2 years. She just seems cold and lacking in human understanding of what we might be going through. 2 years ago I had bladder cancer and have had regular cystoscopy and had just got to the 2 years and thought I had made it and was really shocked to find there were red spots in the bladder that may be more cancer growing. I realise theirs is not an easy job and they have to keep a certain detachment but I do not feel supported by her at all, maybe I am just being over sensitive but then this is a difficult time for me. This is part of my conversation with her. Q Can you let me know the results asap A Yes. I am on holiday next week so you will have to wait until the week after, you can ring me then. Q Can someone else give me the results I really do need to know A Mmmm, you could call my colleague.. Q waiting for the results is the hardest of all A well you will still have to wait for treatment anyway Q I was really upset  when I found the cancer may have returned. A Oh!  Really! Q I was really shocked yesterday. A Well I told you it could recur! Q What might the treatment be if it is the same as last time A You will have to wait and see Q I read on one of the websites that if the cancer returns and its the same type etc as before then after surgery its normal to have 6 weekly visits to have chemo in the bladder. And I really would like to know what the next procedures might possibly be A You will just have to wait and see Q But is this the usual procedure if the cancer is the same as before A yes

Parents
  • Hi daisies,

    Welcome to Cancer Chat where you will receive a sympathetic ear, good help and support.

    No one deserves to be treated in this way let alone someone in your situation. Yes you can do something about it and it is essential that you do - for your sake and other patients being looked after in this hospital. There are numerous ways - contact the Mcmillan off ice, speak to the cancer care nurse allocated to you at the oncology unit and contact your local PALS. I realise this is a stressful time for you and you are not being helped by this individual so complain and hand the problem on and ask for another nurse in the meantime.

    Please return and let us know how things are for you. Best wishes. Rodis.

Reply
  • Hi daisies,

    Welcome to Cancer Chat where you will receive a sympathetic ear, good help and support.

    No one deserves to be treated in this way let alone someone in your situation. Yes you can do something about it and it is essential that you do - for your sake and other patients being looked after in this hospital. There are numerous ways - contact the Mcmillan off ice, speak to the cancer care nurse allocated to you at the oncology unit and contact your local PALS. I realise this is a stressful time for you and you are not being helped by this individual so complain and hand the problem on and ask for another nurse in the meantime.

    Please return and let us know how things are for you. Best wishes. Rodis.

Children
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