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Advice dealing with psychosis/severe mental health problems

Hi

My 59 yr old mum has very recently been diagnosed with ovarian cancer and is currently suffering a sort of psychosis. I wondered if anyone has any experience of this and can offer any advice, tips to cope. She was fit and well only a few months ago and was then treated for bladder infections then started to suffer with leg and abdomen swelling. Her mental health deteriorated from suffering from anxiety to then suddenly having hallucinations and delusions and and was immediately hospitalised following an episode where her behaviour became dangerous (she became aggressive and challenging and tried to strangle dad). she has since been diagnosed with a 12cm tumour and as her mental state improved and with her expressing a wish to go home, she was discharged.

A few days later |(whilst at home) she cancelled an appointment (to see about having chemotherapy) unbeknown to my dad although was quite lucid if rather anxious. In the matter of another week she again became increasingly anxious and agitated , not sleeping and now has been readmittred after another psychotic episode. In the last week since she has been treated in hospital her mental health has deteriorated rapidly and now is at the point where she is no longer making any sense (heartbreaking). She was due to have a MRI brain scan last Tuesday however refused to co-operate. My dad and I are due to speak with the doctor tomorrow to discuss. There is a history of mental illness in the family (her mum suffered from schizophrenia and died from secondary thyroid cancer at the age of 67), and her younger sister, my Aunt, who has not been in touch for years but has a history of mental health problems has just been also diagnosed with schizophrenia and has been sectioned a few weeks ago (mum is unaware of this).

I went to see her this afternoon and she was so confused and became agressive, she won't take any medication and has become incontinent at times, as she is unaware of what is going on. She looked at me like she hated me today but alternated with hugs, I was actually scared that she was going to attack me at one point, the nurses have had to move her to a side room as she is so disruptive.

I am looking for support and advice really, being a working single mum to three kids means I am not able to support my parents as much as I'd like (i.e babysitters for the hospital visits are hard to find means I can only visit every two or three days when I can organise for someone to take the kids for a couple of hours). The only other family we have are my sister who is actually ill herself with chronic fatigue and is struggling herself.

Thanks for reading xx

Parents
  • I am reading this six years after it was posted. It may no longer be relevant, but have you researched auto immune disease. I have experienced a loved one suffering hallucinations, psychosis, seizures as a result of what was eventually diagnosed as auto immune encephalitis. I understand that auto immune disease can be brought on if a patient has a form of cancer. I am posting this just in case it helps.
  • h, do you know if people suffer from a feeling that their body isn;t theirs ?

     

  • Francesca i know i’m replying late but can you provide more info on your relative who had encephalitis?

    I’m going through a similar situation to OP right now with my mother. Thankfully though, she has NOT been diagnosed with any type of cancer however what started as a bout of “possible” vertigo or labrynthitis, has very quickly spiralled out of control to the point my mum is now in a psychiatric hospital after hurting my dad real bad during an episode of “psychosis”. This landed her in prison initially however she has now been released on bail with the condition that she gets psychiatric help. 

    She believes she is dying from cancer since the vertigo symptoms started 4 months ago. She has now been diagnosed with severe depression with psychotic episodes. She has had some physical tests done which have come back clear and is in the process of having a some more. Her psychiatrist has also ordered blood tests to check for autoimmune disorders, did it show on your relatives blood tests or did they need a lumbar puncture to diagnose? What were their symptoms etc?

    I would be so greatful for any information you can provide as this whole situation is extremely distressing for myself and my family. 

Reply
  • Francesca i know i’m replying late but can you provide more info on your relative who had encephalitis?

    I’m going through a similar situation to OP right now with my mother. Thankfully though, she has NOT been diagnosed with any type of cancer however what started as a bout of “possible” vertigo or labrynthitis, has very quickly spiralled out of control to the point my mum is now in a psychiatric hospital after hurting my dad real bad during an episode of “psychosis”. This landed her in prison initially however she has now been released on bail with the condition that she gets psychiatric help. 

    She believes she is dying from cancer since the vertigo symptoms started 4 months ago. She has now been diagnosed with severe depression with psychotic episodes. She has had some physical tests done which have come back clear and is in the process of having a some more. Her psychiatrist has also ordered blood tests to check for autoimmune disorders, did it show on your relatives blood tests or did they need a lumbar puncture to diagnose? What were their symptoms etc?

    I would be so greatful for any information you can provide as this whole situation is extremely distressing for myself and my family. 

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