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Advice dealing with psychosis/severe mental health problems

Hi

My 59 yr old mum has very recently been diagnosed with ovarian cancer and is currently suffering a sort of psychosis. I wondered if anyone has any experience of this and can offer any advice, tips to cope. She was fit and well only a few months ago and was then treated for bladder infections then started to suffer with leg and abdomen swelling. Her mental health deteriorated from suffering from anxiety to then suddenly having hallucinations and delusions and and was immediately hospitalised following an episode where her behaviour became dangerous (she became aggressive and challenging and tried to strangle dad). she has since been diagnosed with a 12cm tumour and as her mental state improved and with her expressing a wish to go home, she was discharged.

A few days later |(whilst at home) she cancelled an appointment (to see about having chemotherapy) unbeknown to my dad although was quite lucid if rather anxious. In the matter of another week she again became increasingly anxious and agitated , not sleeping and now has been readmittred after another psychotic episode. In the last week since she has been treated in hospital her mental health has deteriorated rapidly and now is at the point where she is no longer making any sense (heartbreaking). She was due to have a MRI brain scan last Tuesday however refused to co-operate. My dad and I are due to speak with the doctor tomorrow to discuss. There is a history of mental illness in the family (her mum suffered from schizophrenia and died from secondary thyroid cancer at the age of 67), and her younger sister, my Aunt, who has not been in touch for years but has a history of mental health problems has just been also diagnosed with schizophrenia and has been sectioned a few weeks ago (mum is unaware of this).

I went to see her this afternoon and she was so confused and became agressive, she won't take any medication and has become incontinent at times, as she is unaware of what is going on. She looked at me like she hated me today but alternated with hugs, I was actually scared that she was going to attack me at one point, the nurses have had to move her to a side room as she is so disruptive.

I am looking for support and advice really, being a working single mum to three kids means I am not able to support my parents as much as I'd like (i.e babysitters for the hospital visits are hard to find means I can only visit every two or three days when I can organise for someone to take the kids for a couple of hours). The only other family we have are my sister who is actually ill herself with chronic fatigue and is struggling herself.

Thanks for reading xx

  • Hi just an update really. The brain scan was clear so she is to be treated for the psychiatric problem. Due to visit again this afternoon with my sis and dad and trying to mentally prepare myself. She still thinks she is pregnant and that she wants to come home, it's heartbreaking to see her in this state. I hope that she comes out of this very soon so that the chemo can be started.

  • Hi tinytears 71.

    This all sounds really distressing. Some schizophrenias, Hebephrenic if I remember rightly, take patients to a happy giggly place where they aren't aware of anything bad happening. Your mum may be experiencing something quite different, within the paranoic family of schizophreniform illness. Terrible to think that she's having a really unhappy time believing things that aren't objectively "true" when there is a genuine reason for her to be unhappy which she seems to be denying.

    Another tiny, and probably quite unlikely, possibility is dehydration. My mother, before she died, and my wife before she was recently "cured" went through periods of apparent mental ill-health simply because they weren't getting enough fluids. In both cases this was partly caused by loose bowel movements (losing more fluid than normal) and made worse by a loss of thirst. Your mother's medical staff have probably thought of this and discounted it but it's worth checking.

    One of the worst, and quite intractable, aspects of this is that your poor mother may not be able to give informed consent to whatever treatments might help her. Most cancer treatments carry risks and unwanted side-effects. Some perfectly coherent people choose not to accept them. It'll be really tough not to know what your mother's true opinion would be, whilst she's so mentally unwell.

    I'm hoping she comes through this episode quickly.

    Best wishes

    Newbie.

  • I am reading this six years after it was posted. It may no longer be relevant, but have you researched auto immune disease. I have experienced a loved one suffering hallucinations, psychosis, seizures as a result of what was eventually diagnosed as auto immune encephalitis. I understand that auto immune disease can be brought on if a patient has a form of cancer. I am posting this just in case it helps.
  • h, do you know if people suffer from a feeling that their body isn;t theirs ?

     

  • That is an awful lot to cope with for you.

    You really need to take good care of yourself, find as much support as you can and trust that the medical care team your Mum has will do the very best for her when you cannot be there. In my experience, they are wonderful in a situation as complex and difficult as you describe.

    My Mum developed psychosis in her 60's for the first time. It was shockingly difficult for us to cope with because it felt like we lost our Mum - she was so strong all her life before this and it was so unexpected. It turned out she had a blocked artery in her neck which caused the problem. With treatment she did improve and in a matter of weeks she was back to herself. I am sure the medics will try to find the underlying cause of your Mum's psychosis. It may mean you consider giving them permission to do this under sedation if she is not willing to co-operate. Speak with her team and try to work it out; if visiting is very difficult, phone calls to the team can be helpful. Hang in there - this is truly an extremely difficult experience. Try to stay positive and get support for yourself...... 

     

  • I've just checked and Tinytears hasn't posted on here for several years.

    I do wish someone would archive some of these old threads. A few weeks ago someone was arguing with something a friend of mine (now deceased) had posted a couple of years ago. It would have amused her to know she was still causing controversy :-) 

  • Hello everyone,

    We're locking this thread as it is an old one that might not get a response from tinytears-71.

    Like davek quite rightly pointed out, they haven't been active on the forum for a while now and might not see the responses posted here. Feel free to start a new discussion on the same subject though.

    Thank you for your understanding.

    Renata, Cancer Chat Moderator

     

  • Francesca i know i’m replying late but can you provide more info on your relative who had encephalitis?

    I’m going through a similar situation to OP right now with my mother. Thankfully though, she has NOT been diagnosed with any type of cancer however what started as a bout of “possible” vertigo or labrynthitis, has very quickly spiralled out of control to the point my mum is now in a psychiatric hospital after hurting my dad real bad during an episode of “psychosis”. This landed her in prison initially however she has now been released on bail with the condition that she gets psychiatric help. 

    She believes she is dying from cancer since the vertigo symptoms started 4 months ago. She has now been diagnosed with severe depression with psychotic episodes. She has had some physical tests done which have come back clear and is in the process of having a some more. Her psychiatrist has also ordered blood tests to check for autoimmune disorders, did it show on your relatives blood tests or did they need a lumbar puncture to diagnose? What were their symptoms etc?

    I would be so greatful for any information you can provide as this whole situation is extremely distressing for myself and my family.