Is there anyone out there with experience of or has had NHL (Non Hogkins Lymphoma)?

Hi

As the title describes i am looking for anyone that has or has had experience of NHL, either first hand or a family member has it as i am looking for someone to talk to about things as my mum has been diagnosed with it and is starting her 2nd round of chemo next week!

So if there is anyone out there that wouldnt mind me bending their ear or just telling me their story i would appreciate it, plus any advice or hints on how i can help my mum along the way i would appreciate that too!

Thanks

Parents
  • Hi, I have Follicular Lymphoma. I am currently on watch and Wait. I have a 2 and a half year old daughter and another in the way. I am 35, I would welcome any contact about this condition. Personally I think I am slowly going mad! I have had a tumor removed from my neck, another removed from my groin and am in surgical remission although I have lumps in my neck,groin and stomach...scared but FIGHTING.

  • Hello Everyone

    Its been a long time since I updated on here ,but I look in quite often and read your mails , and pray for you all ,

    For my daughter Rosemary who was diagnoised with Non Hodgkins Lymphoma 12 months ago , its been a long hard year for her and for us supporting her on this very difficult journey, Sadly our Rosemary passed away yesterday Sunday 23rd October 2011

    She was on pallative care in a local Nursing home , we got a phone call yesterday lunch time to say Rosemary was fading and it would be a good idea for her family to get there , sure enough Rosemary was struggling to breath but knew we were there her daughter laid on the bed with her holding mam in her arms her brother and myself and dad talking to her and she just stopped breathing it was so peaceful when its my turn to go I hope I go like that,  Rosemary was only 43 with three children , shes been through some difficult dark days we are pleased shes in no more pain now

    We canot thank the Consultant and his team enough for all they did for her , also The Seven Hospice Telford and the Macmillan support team, The Rylands Nursing Home Telford , all these nurses and care workers cooks and laundry people and cleaners, are living angels , what an example they show to the rest of us with their unfailing dedication to their paitents and their relatives God Bless them all

    So many of your messagers on her have been very supportive and encouraging , I will continue to follow your stories

    Much Love to you all God Bless Huggs and x x x Brenda

Reply
  • Hello Everyone

    Its been a long time since I updated on here ,but I look in quite often and read your mails , and pray for you all ,

    For my daughter Rosemary who was diagnoised with Non Hodgkins Lymphoma 12 months ago , its been a long hard year for her and for us supporting her on this very difficult journey, Sadly our Rosemary passed away yesterday Sunday 23rd October 2011

    She was on pallative care in a local Nursing home , we got a phone call yesterday lunch time to say Rosemary was fading and it would be a good idea for her family to get there , sure enough Rosemary was struggling to breath but knew we were there her daughter laid on the bed with her holding mam in her arms her brother and myself and dad talking to her and she just stopped breathing it was so peaceful when its my turn to go I hope I go like that,  Rosemary was only 43 with three children , shes been through some difficult dark days we are pleased shes in no more pain now

    We canot thank the Consultant and his team enough for all they did for her , also The Seven Hospice Telford and the Macmillan support team, The Rylands Nursing Home Telford , all these nurses and care workers cooks and laundry people and cleaners, are living angels , what an example they show to the rest of us with their unfailing dedication to their paitents and their relatives God Bless them all

    So many of your messagers on her have been very supportive and encouraging , I will continue to follow your stories

    Much Love to you all God Bless Huggs and x x x Brenda

Children
  • Dear Brenda,

    On behalf of everyone here at Cancer Chat, I'd like to say how sorry I am that your daughter Rosemary has passed away.

    I'm glad to read that she died peacefully with her family around her. It sounds like she had wonderful care from the people around her.

    Very best wishes to you and your family.

    Renata

    Cancer Chat Moderator

  • Dear Brenda,

    I'm so sorry to hear your daughter Rosemary has passed away, she was truely blessed to have such a wonderfull mother like you.  I myself don't post on here very much but always pop in to check how everyone is doing, so please keep in touch, i'm always here for a chat if you ever need to.

    My best wishes to you and your family,

    Lynn x

  • hi brenda

    this is so sad,i know it has been a hard time for you all and i so sorry to read this,and send my deepest sympathies to you all,and i am here when you need me,so take care.

       jeff  hugz to you all. x.

  • Thank you Renata Lynn and Jeff

    We have got a nice celebration service sorted for the 4th November , To celebrate Rosemarys life , We are a bit worn out doing all that has to be done at these sad times and weve been busy getting a mums memory box sorted out for Rosemarys youngest daughter Sasha she only 13

    Like some of you say you have been planning your funerals Rosemary did too so thats given us guidance , Im doing ok so far but I think a part of me will go with Rosemary I like some of Angelinthemakings ideas and I love reading whats going through that latest young mans mind cant bring his name to mind , it was good to see his little boy on film , I hope if things get too difficult some times for him he asks his wife to update us , Ive been one of his readers that dont say nothing hes a great insperation though

    And you Jeff it was good to hear from you you were the fist person to contact me , Yes I will stay in touch with you all

    Much Love My thoughts and prayers are with you all Huggs and x x Brenda

  • hi brenda

    no wonder you are worn out,as this has been a long hard journey,and i hope that things go ok on the day of the funeral,and it is a lovely touch,the mums memory box,and her memory will live on in her daughter and yourself,and my heart goes out to you all,so please take care and do keep in touch,as we are always around for you,and as i have found out,the people on this site are a real tonic and will help to keep your spirits up,so i am sending a special cyber hug to you all and am thinking of you all.

          jeff. x hugzzzz to you all.

  • Rest in Peace Rosemary,

    Brenda, you are so brave to share your issues,

    I hope you don't think me forward, but knowing there are caring people like yourself restores my faith in human nature. God bless you.