Is there anyone out there with experience of or has had NHL (Non Hogkins Lymphoma)?

Hi

As the title describes i am looking for anyone that has or has had experience of NHL, either first hand or a family member has it as i am looking for someone to talk to about things as my mum has been diagnosed with it and is starting her 2nd round of chemo next week!

So if there is anyone out there that wouldnt mind me bending their ear or just telling me their story i would appreciate it, plus any advice or hints on how i can help my mum along the way i would appreciate that too!

Thanks

Parents
  • Hello,

        I will give a sincere advice to go alongwith the treatment you are taking: i) completely stop drinking achohol, not even  wine or beer, ii) eat  nutritious  diet- vegetables, plenty of natural juices (not juice drinks), yoghurt etc and iii)  take the advice  that it is curable. This has helped me and I am now in control of my disease.

       If you like my reply, please confirm to me one thing - idoes the patient drinks alchohol on a daily basis?

    Regards,

    Ramana

    29.03.2011

Reply
  • Hello,

        I will give a sincere advice to go alongwith the treatment you are taking: i) completely stop drinking achohol, not even  wine or beer, ii) eat  nutritious  diet- vegetables, plenty of natural juices (not juice drinks), yoghurt etc and iii)  take the advice  that it is curable. This has helped me and I am now in control of my disease.

       If you like my reply, please confirm to me one thing - idoes the patient drinks alchohol on a daily basis?

    Regards,

    Ramana

    29.03.2011

Children
  • Hello All

    I've not posted on here for a while but still logging in and reading your posts , How my heart aches for so many brave people on this site ,

    Rosemary my daughter had her first 6 treatments of chemo , then had a pet scan which told us the scare tissue was still active and that she also had it in the spleen , and it looked like in the head ,

    So it was suggested she had a Stem cell transplant the thought of this scared her to death , but she agreed to give it a go ,She went into hospital early May to have a line put in they couldn't get it in the chest but got it in the groin , Then they gave her an intensive treatment of chemo , the next day she had three fits , she was sedated for two days very poorly two days later she had four fits the poor soul was sedated again on both days of fits she had bitten her very sore tounge  , she has spent the last five weeks in hospital as she's been very poorly , unable to eat very little having platelets every day amongst other drips and pills she was so low she told the hospital staff and her consultant no more needles or treatment I want to die , the consultant told her he wont allow her to die, he sent an anithetist to put the canula back in that kept coming out also the line in her groin came out , how we don't know

    Last Thursday we her next of kin requested an appointment with the consultant as to what's happening to Rosemary , he said another scan was not possible , her stem cell transplant was no longer an option , due to the chemo and her sore mouth and not eating she was now very anorexic has residual disease and not a candidate for further chemo treatment , all that was on offer for Rosemary now is palliative care

    Yesterday she was moved to our local Hospice ( a very beautiful place ) they are being very kind to her helping her to eat and hoping to make the quality of life more pleasant this morning they gave her a jaquisi bath that she said was very nice , I am heartbroken I never thought I would see my 43 year old daughter like this , I am so busy during the day doing all manner of things including looking after Rosemarys 12 year old daughter filling in endless forms and all our domestic duties , now we have to think about closing her flat down , Its not till about this time of night midnight I sit and reflect on things and have a cry and read all your mails on here , This cancer disease is dreadful what it does to folk

    Thought some of you might be wondering how we are getting on , I was hoping for better news to report

    I am a christian myself and some days I now find it hard to pray , those of you who beleive in the power of prayer please pray for us , Thank You

    Much Love to you all ...Brenda Hugs and XXXXXX

  • hi brenda

    i`m so sorry that things are not going well for rosemary,and i know it is so hard to see a loved one in so much pain and distress,and my heart goes out to you all,so try to remain as strong as you have been and i will be thinking of you all and will pray for you all.

      love jeff . hugz to you all x