One week from diagnosis to death!

Hi there

I am writing this and I am not sure why. I think I am still shell shocked at the speed of what has happened. My mum had been feeling tired for a few months and the GP had put it down to her needing to increase her diabetes tablets which was done but made no difference. Blood tests at the begining of July said that her Potassium levels were low and she was put on tablets to increase this. A further blood test said that her iron levels were low so she was put on iron tablets. On Wednesdayt the 22nd of July she woke up at 5 am very breathless, an ambulance was called and she was admitted to hospital, she had more blood taken and a chest x-ray and CT was done, something showed up on the x-ray and CT and that she would need a bronchoscopy which was done on Thursday 23rd July. She was told on the Monday 27th July that she needed another bronchoscopy and that it was nothing that couldnt be fixed, this was due to be done on the Tuesday 28th July. This had to cancelled as the doctor had an emergency to deal with on the Tuesday so it was scheduled for the Wednesday 29th of July. This time it went ahead and on the Thursday my mum was given the results with my brother and niece present, I lived 60 miles away so my niece phoned my and told the bad news, my mum had lung and stomach cancer and there was nothing they could do to help her, it was terminal and that she didnt have long to live, she was only 66 years old and was such a strong, independent woman even though she had other medical conditions she wouldnt give in to. I went to be with my mum on

Friday 31st of July, she was started on morphine as the pain in her chest had got worse. that weekend she was given blood transfusion as the tumour in her stomach was bleeding she was also started on a tablet that would stop this bleeding. She was on a general medical ward and was getting very aggitated at the noise in the ward, so we spoke to the consultant in Pallative care and she said she would arrange a side room which was better for mum she wasnt quite so aggitated. Over that weekend the doctors said mum had had a stroke as her left side was very weak and she couldnt hold her own weight and needed two nurses to help her go to the toilet. Her face had also swollen up as they said one of the arteries taking the blood from the head was blocked and that was why her face was swollen, she was given steroids to try and ease this otherwise she would have had to go to a hospital in Edinburgh for a CT scan and a stent put in but she wasnt strong enough. Mum said she had a lot of pain in her abdomin/heart and the doctors werent sure if it was the tumour in her stomach or if she had a heart attack. During all this mum was saying she wanted to go home but we all knew that she needed a lot of specialist care and that she would never be able to come home. Mum was moved to the hospital Hospice on Monday the 3rd of August and passed away on Thursday 6th of August and I am totally lost, heart broken, lonely and devastated, within a week had lost my mum and my best friend. I am shell shocked at the speed of this I know its only been 10 days since she passed away but I still cant believe it.

Liz x

  • Hi 

    I just wanted to say thank you for your message. It's just so unbelievable how quickly you can lose someone to cancer. I'm so sorry your mum didn't get to see you walking down the aisle, that must have been so hard for you but I believe she would have been by your side on your special day.

    How are you getting on now? It is so so hard just getting on with living wondering what life would be like if she were still here and what would mum say or do.

    I hope you are ok.

    Take care

    Liz 

  • Hi Laura

    Just wanted to say thank you for your reply, I an so sorry for your loss. It is so so hard losing your mum, I think of mine every day, wondering what she would say or do.

    Hope you are ok.

    Take care

    Liz

  • Hi Liz

    I just wanted to say thank you for your reply and how sorry I was to hear about losing your mum. It's such a horrible unpredictable disease, the speed it can spread at is mind boggling. 

    How are you getting on now? I still think about mum every day, what she would say or do, find I am turning more into her every day. I like to think she is right her beside nodding her head or shaking it if I do something she doesnt like, silly really but it helps me cope.

    Hope you are ok?

    Take care

    Liz

  • Hi sorry to hear about your mam it's really sad . My mam was fit 79years Young still working as a athletics judge long days and upto 4times a week she loved it . She went to doctors because she was getting short of breath. The doctor sent her straight to hospital and they did further test said she need a new heart falve,they kept her in so she done as little as possible .she was in 7days waiting for a bed in a different hospital . I went 2a day every day and she just went down hill every day  but the hospital couldn't see that for some reason . On the last night I saw my mam she was dreadful she couldn't stand up I had to help he on the comode I left her at half 8,I spoke to a member of staff on the way out I said(are you waiting for my mam to have a heart attack before you do anything ) I was so annoyed . I got home and my mam phoned me at 9.15 said she had called for the docto cause she felt awful then at 10 pm I got another phone call and it was a member of staff saying I needed to come back up to hospital my mam had took a turn for the worse , when I got there they were working on her I couldn't believe what I was hearing !!!!!! After 25 minutes they got a faint pulse took her to the ICU unit and got her settled they came along for me to go and see her ,just as I went in the curtain they were working on her again and that was it she was gone just waiting for a bed in a different hospital over a week . I had a meeting with her surgeon he said she was an emergency not urgent !!!!!!! How wrong they were. To me they killed my mam that is the way I see it and I will never think any different  , and on top of that in the short bit of time they lost her rings they were on her fingers till 8.30 but not a few hours later , never got them back and that was 2years gone October last year .

  • Hi Dawn,

    Sorry to read about loss and the theft at that extremely negligent hospital,

    Nothing can or ever will replace the presence of a loving Mother,

    I knew this all my life but unfortunately I have to live that truth now, since April 13th.

    She had breast cancer but it was under control,

    I also feel they killed her by suggesting she be on the extremely toxic medicine for 6 months before they operate, it wasn't a very big lump to start with and she was 67,

    My exact words were, "6 months, are they trying to kill you",

    One month before a pathetic check up was due,

    She had a catastrophic stroke after a somewhat stressful day shortly after fixing herself something to eat.

    She immediately went into a coma after staring blankly then grasping at her clothes, things and seizuring up some food.

    The parsmedics were slow to the scene and 2 days later she flat lined.

     

    like you, she was enjoying life, just retired and was looking forward to some travel and renewing her driving licence.

    Disbelief doesn't even begin to describe the emptiness, she was my universe and best friend, i'm only alive due to the health of my body but I can see and feel it collapsing on itself from floods of stress hormones despite food, distractions, stretching, sleep.

     

    Please everyone, keep an eye on stroke besides the cancer. Iron when on the menopause can be deadly too since it can increase the blood pressure. Regular check ups are a must.

     

    Never thought it would or could happen to someone as lively and strong as my Mum. Hopefully you're in a better place Mum.

     

    Your daughter forever, Elizabeth.