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PIP and incurable blood cancer?

33Archersmate
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Hello,

i’m struggling to fill in the pip form for my other half for a number of reasons, he was only diagnosed with chronic myelomonocytic leukaemia in March so he doesn’t really have any evidence to support his claim, and he has never been diagnosed officially with any neurodiversity which I think is the main reason people in the past kept saying to him he needs to claim Pip, and we do not really know any of the consultants yet, although I have my doubts, whether any of them will be of any help anyway.

I feel like everything that I have written so far it’s just my opinions Particularly those relating to his behaviour, and it is somewhat coming over like a character assassination.

we are still finding out more about the treatments that he is receiving and the effects I have on you. And he has almost finished his second round of chemo.I am concerned that he is not telling me everything that he’s going on with him physically. And I actually think he’s probably more sick than he’s admitting or he doesn’t recognise the fact that he is, I think he’s worried about stressing me. Big joke is that it is stressing me out that I don’t know.

I know for a fact that he’s not asking the medical staff at the hospital the appropriate questions he doesn’t seem to understand that nurses can’t give you the test results they don’t have that information and it has been impossible for him to get hold of any doctors in the haematology day unit.and I have been unable to attend with him this time, although actually really it was really quite useless me going last time as I was not allowed to go into the treatment room as I am not the patient and have not been swabbed. I am in the difficult situation that because he’s so childlike he needs an adult with him but they are taking advantage of the fact that he is on his own, because he’s not asking questions and they don’t need to answer anything or tell him anything which must speed everything up a lot.

i’m running out of time to return the PIP form completed and only have a few days left. I just feel like I’m bashing my head against the wall.

  • I'm so sorry to hear of the difficulties you're having filling in the PIP form for your partner 33Archersmate.

    This must be incredibly stressful but if you give the PIP helpline a call on 0800 121 4433, you should be able to ask for an extension.

    Macmillan have welfare rights advisers that can help you fill out the form and provide any other information and advice you may need, so do be sure to get in touch with them when you can as well.

    Hopefully some of our members who have been through this process will offer their tips and advice to you soon but in the meantime, we're thinking of you both and sending all our support your way.

    Kind regards,

    Steph, Cancer Chat Moderator

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    Hi I am on PIP, and terminal, made a claim with help from Macmillan, never been on benefits and knew nothing about PIP, and they were great, I was the problem, instead of giving answers based on my worst days, i based them on my occasional good one so my claim failed, my Macmillan nurse got me another form an we filled it in again the right way this time and was advised to get a letter from my consultant, just a few words about my situation and this enabled me to get my claim backdated to my original claim 5 months earlier, yes they take their time, but the consultants letter sorted everything out in a week, PS you should c able to claim universal credit, and with your partners prognosis at a higher level, I was refused for having too much in the bank only, I hope this helps

    Eddie xx

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