Hello Debbie, 

Poor you this sounds really painful and what you are going through seems indeed to be linked to your radiotherapy treatment for throat cancer as mentioned on our side effects of radiotherapy page. However as it's been longer than 6 weeks and you are still feeling sick and experiencing so much pain, I would get in touch with your medical team or specialist or mention it to your GP in the first instance. I am sure they will be able to help you get some pain relief or to treat those dreadful ulcers. You are definitely really brave living like this for the past few weeks but I think it's definitely worth getting some medical help now and discussing this with a medical expert. 

Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm if you'd like to talk to them about this. 

I hope that you will meet others on the forum who have been in a similar situation before and that they will come and share their experience with you. 

Hopefully you feel better soon and this will heal completely so you can have some respite from all this pain. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hello Lucie, 

Thankyou so much for responding to my post   It's nice to know that someone cares, sorry if that sounds like self pity but my stiff upper lip is waning. That's very good advice I will certainly do that now I know it's ok to do that. Once again Thankyou lucie

kindest regards 

Debbie

You're most welcome Debbie and it definitely isn't self pity! You have been so brave. I really felt for you as that is a lot to have to put up with so definitely forget the stiff upper lip as you say (that made me smile) and get in touch with the doctors. Even over the weekend, you won't be bothering them at all and you can ring 111 if you feel you'd like to talk to someone now. 

I hope it gets sorted for you quickly as it sounds so painful. 

Lucie

Hi recently I've been very worried about throat cancer or tonsil cancer. If you don't mind me asking what were your symptoms. I've recently had 3 ENT appointments meaning camera up my nose and rown my throat 3 times and they said they can't find anything. I still have symptoms though but could be reflux. I'm so anxious recently. I've also had two ultrasounds on my neck which were completely fine. Head mri and ct head. Chest X-ray, full spine mri. Would they have detected something like cancer by now. Sorry for the rant.

kim x

Hello Kim 

That's not a rant if your worried then that's real. In my case my right tonsil was very enlarged but there was no pain so I left it fir 6 months, it wasn't until it interfered with swallowing that I went to the doctor he sent me to ENT and the consultant did the camera thing he also put he's whole hand in my mouth to feel my tonsil (urg!). He diagnosed it straight away as tonsil cancer then it was non stop. The doctors and nurses well the whole team really do know what there doing so it should put your mind at rest Kim if they've said it's not tonsil cancer. Sounds like they need to keep digging to get to the bottom of it. Good luck Kim hope you get some answers   Take care

kind regards Debbie

Hi Kim highly unlikely you've throat cancer if you've had 3 scopes plus m r I s. The ent consultants know whst they are looking at. My only symptom was a lump in the hollow area if my collar bone. I had no issues swallowing  drinking eating no sore throat So maybe acid reflux needs investigation 

hope this helps Hazel look at my blog for more info on my experience www.radioactiveraz.Wordpress.com 

Hi thank you for your reply, I went again to the ENT. Another camera down my throat said all looked normal. He said I have very small tonsils. He felt around my neck and said he couldn't feel any lymph nodes. Should I take this and just move on now? He thinks the pains in my ears and neck are from muscle tension. 

Surely after all theses tests: blood test x10 ultrasounds on the neck x2 mri of the head and full spine mri. Also seen the dentist a lot too. Do you think they would have found something by now? 
kim x
 

How was you dignose if you don't mind me asking x

Hi I had a lump in my collarbone hole fircsbout 6 weeks nothing ruse. We were in Spain on holiday on our return went to g p he immediately put me on 14 day cancer pathway. I had a fine needle biopsy results a week later showed squamous cancer cells. Had a ct scsn with contrast thrn m r j. Following week a general anaesthetic on tonsil   Results confirmed by oncologist as h p v 16 + orapharangeal cancer. My blog give more info www. radioactiveraz.Wordpress.com 

hazel 

Hi do you think anything would be missed after I've had all theses test. My main worry right now is my right side of my neck is painful when I turn my head. What should I do?

kim x

Hi Kim. Sorry  I can’t comment  in medical advise. I would say if you’ve been seen by e n t and had scans the consultants know. I never ever personally had any neck pain. You don’t say how old you are tonsillae Cancer is very rare in females the year I was diagnosed onky 50 cases approx in the U.K. .

maybe contact your g p. In these covid times a lot of people are feeling anxious.

Good luck Hazel 

Hi Kim. Sorry  I can’t comment  in medical advise. I would say if you’ve been seen by e n t and had scans the consultants know. I never ever personally had any neck pain. You don’t say how old you are tonsillae Cancer is very rare in females the year I was diagnosed onky 50 cases approx in the U.K. .

maybe contact your g p. In these covid times a lot of people are feeling anxious.

Good luck Hazel 

Hi, I'm only 19 I'm just freaking out right now. Part of me knows I should listen to them but do you think the camera up the nose and down the throat is a good piece of equipment to dignose something like that. 
thank you for replying really appreciate it.

kim x

Hi at 19 it's highly unlikely that you will have throat cancer. Yes the scope is the best way in my experience of diagnosing my type if cancer. In fact it's the only way they check for any reoccurrence si have a scope at every check up . you've had the scans you've had the scope  maybe you need a visit to g p to see if there's anything they can give you for anxiety issues . Try to life your life and stop worrying about the what ifs  throat cancer takes either 30-40 years in my case if exposure to the h p v virus or years of smoking and drinking . At 19 you won't have had any of those  Hazel x

Hi Hazel thank you for your reply. I do have really bad health anxiety just don't know if this could be causing my symptoms. Did you ever experience ear pain?

kim x

Hi Kim  no ear pain ni sore throat no cough no issues swallowing or drinking. For 61 I was very fit had judt cycled 1100 km. The lump in my collarbone was my only sign. Maybe your health anxiety is manifesting because of COVID . You've had scans etc keep off Dr Google as my oncologist said to me you can self  diagnose anything online,so keep off it please. 
Hazel