☹︎ chemo looming

After waiting for an hr in the hospital waiting room we were told that I need another operation to remove lymph nodes ( I'm in 3 wks recovery from a double mastectomy, sentinel nodes were taken)

I then need a CT scan, chemo and radio. I was told to write off the next 6 months. 

I'm so scared, losing my hair feels like my identity.

How have others got through this? 
 

 

  • Hi sorry to read you find yourself on the journey none of us want to be.

    I was told in March I had breast cancer. Surgery was April 21st and chemo started June 11th. I had my head shaved to close crop when it started coming out, then a week later I lost what was left. It was a shock and I did shed tears. I had bought a cheap wig and assortment of hats. I wore hats to start but now apart from sun hat I go bald everywhere its just too hot. 

    I do have low days as not worked since May and don't see many people but know I have to go through this.

    You will find an inner strength to get through. Happy to help if you have any questions.

    Louise xx

  • Thank you Louise.

    Any chemo tips? What should I take with me...

    k xx

  • Drink plenty before and during. 

    Wear something comfy, I had something on phone to watch but didn't as nurse was with me majority of time first session and all of second. I got offered a sandwich, biscuits and tea and got given jug water. But you can take own food, snacks in. 

    Get some imodium and also heartburn stuff in ready. You will be given anti sickness meds and possibly 7 days of injections and steroids. 

    Xxx

  • Thanks for the advice.

    How are you?

    karen xxxx

  • I'm ok thanks back to isolating as have my final EC session Friday then I change regime. 

    It's not easy going through this so you just have to take it a day at a time.

    Louise xx

  • Hi,

    So sorry to hear you are going through this. I was diagnosed with breast cancer in April and am having chemotherapy before surgery. Im 36. 

    In terms of losing  hair I feel it's important to do what works for you. My hair started shedding towards the end of my first cycle and then a lot more after my second.

    For me personally I went and got a wig and some nice hats/ fashion turbans before I started the chemo. I did have thick waist length hair that was also a huge part of my identity. I had it cut into a short bob and donated my hair. I tried to hold off on shaving it completely as the thought was very upsetting for me. I did end up shaving it on a number 2 then decided to just leave it from there. I'm on my 4th cycle and my hair seems to be growing back. I haven't gone completely bald and have retained some thick hair at the back. Most people I've spoken to have gone bald and I suppose I still could. I allowed myself a good cry before and after I'd shaved my head and to be honest it felt like a relief when it had fallen out. Almost like I didn't have to worry about it anymore. I think it's important to be very kind to yourself during the whole chemo process especially the hair loss as it's not fun and can be upsetting. I don't really think too much about my hair now and am wondering what style I can pick when it grows back. I also got some cheaper wigs to mix things up that Ive warn with a hat. 
     

    Hair loss is such an unfortunate part of the process. I've met other ladies who decided to shave their head before chemo and others that just decided to leave their hair or shave it and wear a wig. The best advice I could give is to do what works for you, allow yourself a cry and try to focus on how it will grow back. I also found once I'd got used to not really having hair it gave me more time to do things like my makeup and outfits to give me a bit more confidence. I've also found it helpful to get a nice scalp oil to put on my head and really focused on self care.
     

    Always here to chat if needed. 
     

    Best wishes