Hi [@Beats29]‍ 

I think the initial feeling is being overwhelmed and you just seem to be taken along for the ride and not really undertanding any of it. I had Surgery Last September and the bloods they did before surgery were also all over the place, but no-one seemed very concerned about it, so I just put it down to how my body was dealing with what was going on and if there was a concern they surely would tell me, but there was just so much information being put on me it was hard to keep up.

I am so sorry that you have not been assigned a breast care nurse, as Jolamine said I wonder why this has not been done for you as I also thought it was routine, although you did mention Macmillan and not the breast care team at your hospital and I have no idea how macmillan nurses work.

Are you signed up to patient access or patient knows best? As you mentioned you saw the results of your bloods, I know at the time I looked on Patient knows best and could see the graph of all the results and I did print them off, as it helps me to have a paper record too as well as seeing it online and watch the changes in the different blood tests I have done, although because I am not a Doctor and don't fully understand what the results mean I do ask questions and read up on it. But it can look quite scary sometimes.

If you can get the Breast Care Team to assign you a Breast Care Nurse, I have found that they are very supportive and will answer your questions and take their time with you and hopefully this will help you going forward. Even Months on I still have questions that pop up and I write them down and I still get overwhelmed with new lumps and bumps and feeling unwell. It just feels more elevated now after a cancer diagnosis..

Thank you everybody for your replies I did contact breast team but their only advice was to contact my GP . It's weird that last time I saw Drs it was always stressed how important it was to start medication , yet I've had no information at all  for  weeks . Surgery was 2 over 2 months ago .I don't know whose prescribing , or when . I will go to GP  but I thought they had to copy you in if they wrote to GPS  

Thank you everybody for your replies I did contact breast team but their only advice was to contact my GP . It's weird that last time I saw Drs it was always stressed how important it was to start medication , yet I've had no information at all  for  weeks . Surgery was 2 over 2 months ago .I don't know whose prescribing , or when . I will go to GP  but I thought they had to copy you in if they wrote to GPS