Liposarcoma

I have retro peritoneal liposarcoma and had a 10kg cancerous mass removed in October 2020. The liposarcoma specialist surgeons removed my right kidney, right adrenal gland, right bowel, psoas fascia muscle and a large section of my diaphragm aswell as the surgeons cutting through my femoral nerve endings so that the tumour could be removed en mass. I had my three month post surgery CT scan which showed that it had come back to near my spine and it had metastasised to my lungs as there were two tumours at the bottom of each lung. One tumour at the top of one lung and an area that they didn’t like the look of.

I have been referred to an oncologist who has put me on six rounds of 48 hour IV infusions of doxorubicin and ifosfamide along with mesna, steroids and saline for 48 hours every 21 days. This means I stay in hospital for 5 days every 21 days so it comes round quickly!

I get very tired about 5 days before I am due to go back in for my Chemo. I am only 42 and am praying for a positive outcome. Does anybody else suffer from absolute tiredness like me before they go in for Chemo?

 

  • Hello Kato-Nans21

    I'm sorry to hear that your recent scan showed that your cancer had returned. It sounds as if the past few months have been a very difficult time. 

    I'm hoping that some of our other members here who have been through chemo will post to share their experiences with you. You've been through so much since your surgery it's understandable that you're experiencing fatigue. Factor in that the treatment you're undergoing can also cause fatigue and it's understandable that there may be times when you feel overwhelmed with exhaustion. 

    We do have some information on our website about fatigue and cancer drugs but please do speak to your Oncologist or chemo team about how you're feeling as well. It may be that they are able to adjust things to try and help. 

    It can also help to talk to someone and I wonder if you might find it beneficial to chat to our nurses about how you're coping. I'm sure they would be happy to listen and to offer any advice and support that they can. If you'd like to talk to them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I hope this helps and wish you all the best for your continued treatment. 

    Jenn
    Cancer Chat moderator